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Old 05-06-15, 10:47 PM   #5
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Join Date: Sep 2012
Location: Hastings, East Sussex, UK
Posts: 1,145
Default Re: Services for Juvenile Huntington’s Disease

Originally Posted by jacqueline View Post
Will you be involved with the HDYO too Allan?

Hi J

The HDYO is a whole world organisation - so dealing with local UK stuff online might not work. I’ve had a look at their message forum over the past year and it’s not current and rarely used by UK JHDers.

Helen Santini is the HDA’s JHD Care Adviser and she is a member of the Project too – so all angles covered.

However, I’ve just invited a young Australian lad to re-post his important message on here as it is very unlikely to get any replies on the HDYO forum.

Good moves in mysterious ways ……

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