Thread: Mobility issue
View Single Post
Old 30-03-18, 10:16 AM   #3
Approved Member
Join Date: Mar 2018
Posts: 4
Default Re: Mobility issue

Thank you for the information
Originally Posted by Trish View Post

Welcome to Messy Board

I can't really give you an answer I'm afraid. It was my hubby who had HD and he went from fully mobile; to having a gait and then balance issues; and then to a wheelchair within the space of about 8 years. However, where each patient is different it's difficult to say if your being mobile at 60 + is down to the presentation in your case; the core strength etc you must be maintaining by not sitting; or a mixture of both?

Hubs was 49 when he passed so it could be that you have inherited what they call late onset. I think, as with Juvenile HD where the symptoms are different, late onset also present differently. Your neurologist and Occu Therapist (if you are seeing them) would be interested in your theory of delaying mobility issues I dare say.

I have always thought it is a pity people with the positive gene diagnosed are not offered OT and holistic therapy such as Alexander's Technique or yoga to help with balance way before mobility might be compromised.
CAT is offline   Reply With Quote