Thread: Hello
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Old 04-08-17, 11:57 PM   #4
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Join Date: Sep 2015
Posts: 236
Default Re: Hello

Originally Posted by Maia burnip View Post
I'm also new to this forum not quite sure how to use it but thought I would give it a go. I'm 19 years old and live in the south west (Devon). My dad got diagnosed with HD about 6 years ago since then every thing in my life turned upside down. I've lost the dad I've grown up with he's gone from running marathons every year to being in a care home with care needed most of the time. The saddest thing is, is that the worst is yet to come. I have always struggled to come to terms with this crippling and soul destroying disease. I always ask my self why did this have to happen to my family? I long to have a healthy dad again and it hurts me to see friends and other family members with there dad. The worst part of this disease to me is the icolation it has caused me I never belevied I could feel so alone. I've never met anyone who is going through what I am so perhaps this is why I've joined this page. I'm so sick and tired of feeling this way. I know this will be with me for the rest of my life and he won't get better but I need to learn how to cope.
Hello sorry to hear how sad everything is for you. It is hard to follow on from the amazing eloquent, honest reply and help that Lily has given you....and so I won't even try to follow such heartfelt advice. For info. though...maybe take a look at one of the fact sheets' available to download from this website ' a young adults guide'.... which will give you details of specialist youth worker etc. and meetings specifically for young adults to attend, where others in your situation can help and support one another. You will find it under 'advice and support '.....I understand your feelings of isolation, but there will be help available to you through this website..... you are not alone...others on this message board will be here to listen.

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