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Old 09-05-18, 08:16 PM   #1
MARTA
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Join Date: May 2018
Posts: 1
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hi, so far I was rather a passive reader of this forum, but at the moment when I understood that there are people in the world with a problem like me, I decided to write my story.
My grandma had HD, my dad also has (she's been sick for 8 years) ... I did the test a few months ago. I decided, because I have noticed that my body is different than before, muscle tremors, etc. The result came positive ...
I'm 26 and I'm broken ...
I am from Poland and with us the only drug is an injection into the spinal cord, did any of you give in to this in the early stages of the disease?
Best wishes, Marta
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Old 10-05-18, 12:51 PM   #2
HDAModerator
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Quote:
Originally Posted by MARTA View Post
hi, so far I was rather a passive reader of this forum, but at the moment when I understood that there are people in the world with a problem like me, I decided to write my story.
My grandma had HD, my dad also has (she's been sick for 8 years) ... I did the test a few months ago. I decided, because I have noticed that my body is different than before, muscle tremors, etc. The result came positive ...
I'm 26 and I'm broken ...
I am from Poland and with us the only drug is an injection into the spinal cord, did any of you give in to this in the early stages of the disease?
Best wishes, Marta
Welcome to the message board Marta. I am sure you will soon have responses from other members.
I expect you are aware of the H.D organisation in Poland but in case you do not:

Polskie Stowarzyszenie Choroby Huntingtona
Rekodzielnicza 17a, 02-267 Warsaw, Poland
Tel: 48-22-8464151
Email: kontakt@huntington.pl / d.lis@huntington.pl
Email chairman everywhere: d.lis@dana.com.pl
Website: www.huntington.pl
Mrs Dr Dorota Hoffman-Zacharska /
Email: dhoffman@poczta.wp.pl
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