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Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD

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Old 07-12-14, 04:33 PM   #1
Shirleys daughter
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Join Date: Jun 2009
Posts: 36
Default Testing....result

I have frequently used the 'virtual' support of the message board for guidance and hope for a cure and an insight into medication regarding living with HD.
I'be been aware of my 'At Risk' status of HD for just over 11 years and throughout that time when I have felt as though I needed HELP with a niggling thought or the reality of hard facts re HD I have logged on here....there are many people on here who I'll never get to meet but have been with me on my journey, I will always be grateful for their honesty and willingness to share their story.

Anyhow...the reason that I'm finally posting is that for the past 6 months I have undergone the counselling sessions for the testing of HD and on Monday 1st December 2014 at 11.40 I was told that I have two normal sized alleles...and I not a carrier of the Huntington mutation.

My father and Aunt died of this disease and my cousin is symptomatic.

I'm fortunate not to have HD

I feel like my life has started over and I'm grateful

If anyone would like to message me regarding the testing process then I would be more than willing to share my journey.
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Old 07-12-14, 05:22 PM   #2
Scooby
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Join Date: Feb 2007
Location: Vale of Evesham
Posts: 494
Default Re: Testing....result

Quote:
Originally Posted by Shirleys daughter View Post
I have frequently used the 'virtual' support of the message board for guidance and hope for a cure and an insight into medication regarding living with HD.
I'be been aware of my 'At Risk' status of HD for just over 11 years and throughout that time when I have felt as though I needed HELP with a niggling thought or the reality of hard facts re HD I have logged on here....there are many people on here who I'll never get to meet but have been with me on my journey, I will always be grateful for their honesty and willingness to share their story.

Anyhow...the reason that I'm finally posting is that for the past 6 months I have undergone the counselling sessions for the testing of HD and on Monday 1st December 2014 at 11.40 I was told that I have two normal sized alleles...and I not a carrier of the Huntington mutation.

My father and Aunt died of this disease and my cousin is symptomatic.

I'm fortunate not to have HD

I feel like my life has started over and I'm grateful

If anyone would like to message me regarding the testing process then I would be more than willing to share my journey.
Thats great news, thrilled for you and your family x
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Old 07-12-14, 09:10 PM   #3
dennisw
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Join Date: May 2007
Location: South Cumbria
Posts: 847
Default Re: Testing....result

Great news.
Dennis
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Old 09-12-14, 08:27 PM   #4
Cupcake
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Join Date: Mar 2011
Location: East Anglia
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Default Re: Testing....result

Very pleased for you xxxxxx
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Old 10-12-14, 06:33 AM   #5
banda
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Join Date: Apr 2014
Location: Consett, County Durham
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Default Re: Testing....result

Great news....
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Old 11-12-14, 10:30 AM   #6
Amanda Stansfield
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Join Date: Nov 2006
Location: Pendle Lancashire
Posts: 247
Default Re: Testing....result

Quote:
Originally Posted by Shirleys daughter View Post
I have frequently used the 'virtual' support of the message board for guidance and hope for a cure and an insight into medication regarding living with HD.
I'be been aware of my 'At Risk' status of HD for just over 11 years and throughout that time when I have felt as though I needed HELP with a niggling thought or the reality of hard facts re HD I have logged on here....there are many people on here who I'll never get to meet but have been with me on my journey, I will always be grateful for their honesty and willingness to share their story.

Anyhow...the reason that I'm finally posting is that for the past 6 months I have undergone the counselling sessions for the testing of HD and on Monday 1st December 2014 at 11.40 I was told that I have two normal sized alleles...and I not a carrier of the Huntington mutation.

My father and Aunt died of this disease and my cousin is symptomatic.

I'm fortunate not to have HD

I feel like my life has started over and I'm grateful

If anyone would like to message me regarding the testing process then I would be more than willing to share my journey.


Hi Shirleys Daughter

Fantastic results I love reading happy news :)
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