| Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD |
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07-12-14, 04:33 PM
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#1
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Approved Member
Join Date: Jun 2009
Posts: 36
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Testing....result
I have frequently used the 'virtual' support of the message board for guidance and hope for a cure and an insight into medication regarding living with HD.
I'be been aware of my 'At Risk' status of HD for just over 11 years and throughout that time when I have felt as though I needed HELP with a niggling thought or the reality of hard facts re HD I have logged on here....there are many people on here who I'll never get to meet but have been with me on my journey, I will always be grateful for their honesty and willingness to share their story.
Anyhow...the reason that I'm finally posting is that for the past 6 months I have undergone the counselling sessions for the testing of HD and on Monday 1st December 2014 at 11.40 I was told that I have two normal sized alleles...and I not a carrier of the Huntington mutation.
My father and Aunt died of this disease and my cousin is symptomatic.
I'm fortunate not to have HD
I feel like my life has started over and I'm grateful
If anyone would like to message me regarding the testing process then I would be more than willing to share my journey.
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07-12-14, 05:22 PM
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#2
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Approved Member
Join Date: Feb 2007
Location: Vale of Evesham
Posts: 494
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Re: Testing....result
Quote:
Originally Posted by Shirleys daughter
I have frequently used the 'virtual' support of the message board for guidance and hope for a cure and an insight into medication regarding living with HD.
I'be been aware of my 'At Risk' status of HD for just over 11 years and throughout that time when I have felt as though I needed HELP with a niggling thought or the reality of hard facts re HD I have logged on here....there are many people on here who I'll never get to meet but have been with me on my journey, I will always be grateful for their honesty and willingness to share their story.
Anyhow...the reason that I'm finally posting is that for the past 6 months I have undergone the counselling sessions for the testing of HD and on Monday 1st December 2014 at 11.40 I was told that I have two normal sized alleles...and I not a carrier of the Huntington mutation.
My father and Aunt died of this disease and my cousin is symptomatic.
I'm fortunate not to have HD
I feel like my life has started over and I'm grateful
If anyone would like to message me regarding the testing process then I would be more than willing to share my journey.
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Thats great news, thrilled for you and your family x
__________________
It's not the clock that ticks the loudest that works the best.
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07-12-14, 09:10 PM
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#3
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Approved Member
Join Date: May 2007
Location: South Cumbria
Posts: 847
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Re: Testing....result
Great news.
Dennis
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09-12-14, 08:27 PM
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#4
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Approved Member
Join Date: Mar 2011
Location: East Anglia
Posts: 1,490
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Re: Testing....result
Very pleased for you xxxxxx
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10-12-14, 06:33 AM
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#5
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Approved Member
Join Date: Apr 2014
Location: Consett, County Durham
Posts: 480
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Re: Testing....result
Great news....
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11-12-14, 10:30 AM
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#6
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Approved Member
Join Date: Nov 2006
Location: Pendle Lancashire
Posts: 247
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Re: Testing....result
Quote:
Originally Posted by Shirleys daughter
I have frequently used the 'virtual' support of the message board for guidance and hope for a cure and an insight into medication regarding living with HD.
I'be been aware of my 'At Risk' status of HD for just over 11 years and throughout that time when I have felt as though I needed HELP with a niggling thought or the reality of hard facts re HD I have logged on here....there are many people on here who I'll never get to meet but have been with me on my journey, I will always be grateful for their honesty and willingness to share their story.
Anyhow...the reason that I'm finally posting is that for the past 6 months I have undergone the counselling sessions for the testing of HD and on Monday 1st December 2014 at 11.40 I was told that I have two normal sized alleles...and I not a carrier of the Huntington mutation.
My father and Aunt died of this disease and my cousin is symptomatic.
I'm fortunate not to have HD
I feel like my life has started over and I'm grateful
If anyone would like to message me regarding the testing process then I would be more than willing to share my journey.
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Hi Shirleys Daughter
Fantastic results I love reading happy news :)
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| About the HDA Message Board |
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A UK-based forum for people whose lives are affected by Huntington's disease and wish to share their experiences with others. Moderated by SHDAs from the HDA, a UK registered charity.
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