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Old 14-10-13, 11:59 PM   #1
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Join Date: May 2010
Posts: 40
Default Plymouthish area (Devon or Cornwall)?

Is anyone on here HD+ pre-symptomatic from the Plymouth area?

Apart from my Mother who has passed away a couple of years ago I have never met another person face to face who's HD+.

Thought it might be nice to meet for a coffee and share our stories about any research or good hospitals or drugs or anything else!!

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Old 15-10-13, 10:30 AM   #2
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Join Date: May 2010
Posts: 40
Default Re: Plymouthish area (Devon or Cornwall)?

Originally Posted by jacqueline View Post
I am sure there is people I met at th AGM who are form Plymouth but if you go to the home page and look for groups I am sure there must be.
Are there no family members either who you know.

Although that's not always the best solution.

Try HDYO too which is an excellent site for you young uns, Found it below.
Thanks Jaq... im 49 the "young uns" wont want me hanging around!!!

My Mum had 5 siblings and many nieces/nephews.. only 2 tested and were negative... 2 uncles defo have it but in denial and not tested also entire rest of family in denial... so i sit alone with about 15 blood relatives who never mention the disease or ask how I am... just ignore it heads in the sand......

If I bring the subject up they just refuse to talk about it...

I feel a bit like a leper!!

be lovely to hear someone say "Oh i have the gene and im not ashamed"!!

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