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Genealogy, children, PGD Discuss family and preimplantation genetic diagnosis issues

 
 
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Old 15-11-17, 11:04 PM   #1
Nessie2571
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Join Date: Nov 2017
Location: Lancashire
Posts: 2
Default PGD process

Hi,
This is my first post as I have just registered today :) I just wanted to get other people's experiences of PGD.
My partner is at risk of HD, we have both known for a long time as his dad was diagnosed with HD around 10 years ago. He is not yet presenting with any symptoms ( he is 49, onset seems to be later in his family). My partner has decided he does not want to take the test as he "doesn't want his life to be on a countdown" which I think is completely understandable. We have been seeing the genetic counsellor for just over a year and we have just taken the plunge and got referred to guys hospital in London for PGD as we want to start a family. We are still in our 20s so we are still young, I'm hoping this will increase our success rate... although that's probably not how it works :/ we know the process can take a long time and that's why we have decided to start now

So I guess my questions are;
Has anyone been to guys hospital before for pgd and what was your experience? We were told by the geneticist that they are the best and have the most experience.
How long was it till you got a first appointment after being referred?
How long did it take before the 1st cycle? I'm expecting around 12 months?
Because we are doing 'exclusion therapy' because my partner doesn't want to find out, will this decrease our success rate ?
Just any info and experience around the whole thing would be great!! :) x
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