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Old 02-10-17, 12:26 PM   #1
Mrsmcgee
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Join Date: Oct 2017
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Default Cab Count

Hello all I'm Ashleigh. My man passed away with hd at the age of 40. After suffering for 14 years. I've been tested and do have the gene myself. I'm just wondering weather a higher cag count means an earlier age of oneset. Thanks.
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Old 11-10-17, 04:15 PM   #2
Gabby
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Default Re: Cab Count

Quote:
Originally Posted by Mrsmcgee View Post
Hello all I'm Ashleigh. My man passed away with hd at the age of 40. After suffering for 14 years. I've been tested and do have the gene myself. I'm just wondering weather a higher cag count means an earlier age of oneset. Thanks.
Hi Ashleigh so sorry about your mum and also your positive status. it is believed a higher count means an earlier onset but its not exact and there is such a range difference within the CAG of when onset occurs .Do you see a neurologist maybe speak to them . Are you concerned you may have symptoms are your nearing your mums age of Onset ?.

Gabby
x
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Old 12-10-17, 12:41 AM   #3
Allan
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Location: Hastings, East Sussex, UK
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Default Re: Cab Count

.
Hi Ashleigh

Have a look at this. I didn't mean the response to be so long, just got carried away ...

http://hdmessageboard.com/showthread.php?p=65479#post65479

.
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Old 13-10-17, 08:50 AM   #4
jacqueline
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Default Re: Cab Count

Quote:
Originally Posted by Mrsmcgee View Post
Hello all I'm Ashleigh. My man passed away with hd at the age of 40. After suffering for 14 years. I've been tested and do have the gene myself. I'm just wondering weather a higher cag count means an earlier age of oneset. Thanks.
Hi Mrs,
Welcome to the message board.

So sorry you have lost your mum at such an early age.
Nothing in HD seems too have a rule of thumb in any way.
High CAGs can sometimes mean early onset but honestly MrsMcGee nothing is normal in HD.
In my ex hubbys family HD is rife at different ages and nobody is the same.
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Old 22-10-17, 10:56 PM   #5
Cupcake
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Join Date: Mar 2011
Location: East Anglia
Posts: 1,473
Default Re: Cab Count

Just wanted to welcome you to the site, so sorry you have tested positive and you lost your mum to HD.

Allanís link is very good advice. HD is so different in everyone. My hubby died aged 54yrs, my two sons are in their mid late twenties and both untested as yet. We take each day at a time and try and live every day to its full.

I am sure you will get plenty of support on here and makes some new friends to go forward with, and the support from people who understand your situation.

Take care xxxxx
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Old Yesterday, 06:58 PM   #6
melissa21
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Join Date: Oct 2012
Posts: 65
Default Re: Cab Count

Hi Ashleigh,

Sorry to hear you have tested positive!!


That is correct that a higher CAG usually means an earlier onset.

My Dad had a CAG of 46 and he got diagnosed when he was 35 years old.


I have tested positive myself and i have got a high CAG of 51 and my symptoms started when i was 21 years old.

So that pattern has definitely been in my family.

Stay strong

Melissa





Quote:
Originally Posted by Mrsmcgee View Post
Hello all I'm Ashleigh. My man passed away with hd at the age of 40. After suffering for 14 years. I've been tested and do have the gene myself. I'm just wondering weather a higher cag count means an earlier age of oneset. Thanks.
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