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Diet, food, equipment Ask questions or pass on ideas about diet, food and equipment

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Old 26-03-10, 05:34 PM   #1
yvonneg
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Join Date: Nov 2006
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Default Special Wheelchairs

Hi,
I have not posted on here in a while but I do read everyone's posts quite often. My daughter Laura is 23 and has JHD. She is in the late stages and we are tryng to do everything we can to make her life as good as possible. At the moment Laura sits in a normal wheelchair all day, so we held a benefit dance to raise funds for a specialised chair, the generosity of the people in our home town was overwhelming and we raised more than enough for Laura's chair. It has now been ordered and she should be sitting in it next week. Wahay!!

However, (don't you just love that there is always a however with HD) the chair we have ordered is only for indoor use and we have just been told that Laura now needs a more supported wheelchair for going outdoors as she is sitting with her head nearly touching her knees. Does anyone have any idea what sort of supported chairs there are out there and if there are any sites that sell chairs second hand. Like I say we try and make Laura's Life as full as we can and there is nothing better than when we take Laura out and she throws her hands in the air and shouts FREEDOM. lol.
Any advice will be most appreciated.
Thanks
Yvonne
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Yvonneg
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Old 26-03-10, 05:39 PM   #2
just1moreperson
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Default Re: Special Wheelchairs

Bless her, freedom indeed

My dad had use to lean forward as well, I use to just keep my hand on his shoulder. But I do vaguely remember someone local who had some sort of neck support on the wheelchair which kept them upright. Maybe that's a way to go, sorry I can't provide any more than that.

Tc, Matt.
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Old 26-03-10, 06:10 PM   #3
arsenal61
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Join Date: Dec 2006
Location: northants
Posts: 234
Default Re: Special Wheelchairs

[QUOTE=yvonneg;32593]Hi,
I have not posted on here in a while but I do read everyone's posts quite often. My daughter Laura is 23 and has JHD. She is in the late stages and we are tryng to do everything we can to make her life as good as possible. At the moment Laura sits in a normal wheelchair all day, so we held a benefit dance to raise funds for a specialised chair, the generosity of the people in our home town was overwhelming and we raised more than enough for Laura's chair. It has now been ordered and she should be sitting in it next week. Wahay!!

However, (don't you just love that there is always a however with HD) the chair we have ordered is only for indoor use and we have just been told that Laura now needs a more supported wheelchair for going outdoors as she is sitting with her head nearly touching her knees. Does anyone have any idea what sort of supported chairs there are out there and if there are any sites that sell chairs second hand. Like I say we try and make Laura's Life as full as we can and there is nothing better than when we take Laura out and she throws her hands in the air and shouts FREEDOM. lol.
Any advice will be most appreciated.
Thanks
Hi, i dont know if this is of any help to you, i work with special needs children, some which use wheelchairs, one child i work with cannot sit upright unaided, her wheelchair has a special brace attached to it, so when she is sitting in her chair, she has a brace on which has two sides that join in the front and is held by a very strong velcro, it works really well for her, i would look into it, it is also worth popping into your local disability shop as they visit a multitude of customers in their homes and see lots of different aids for wheelchair users, i hope this is of some help im not sure if you can imagine what i mean but tis worth asking. i wish you the best of luck. carol x i forget to say i have seen over the shoulders straps too, which keep the client upright.
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Old 02-05-10, 07:30 PM   #4
Ruby2005
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Join Date: May 2010
Posts: 51
Default Re: Special Wheelchairs

Hi there,

Did you manage to find the upper body support you were looking for?

This link leads to a pdf file which could be useful.

http://www.bodypoint.com/downloads/T...tUserGuide.pdf

Ruby
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Old 11-05-10, 10:12 PM   #5
kayleigh
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Location: leyland lancashire
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Default Re: Special Wheelchairs

hhhiya i rreally hope thhat you gott laura sortedd out:)
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