Return to HDA home page HDA Message Board
HDA About the HDA HDA What is HD HDA Juvenile HD HDA Children & Young People HDA Professionals HDA Resources HDA Research HDA HDA News HDA Events HDA Contact the HDA HDA Home Page

Outside of office hours if you need someone to speak to you can phone the Samaritans on 116 123


Go Back   HDA Message Board > Message Board Categories > New Members

New Members Introduce yourself, and get to know how the HDA Message Board works

Reply
 
Thread Tools Display Modes
Old 20-07-13, 05:23 PM   #1
Trish
Approved Member
 
Trish's Avatar
 
Join Date: May 2010
Location: England
Posts: 2,367
Default Calling all Newbies

Hello all and welcome to Messy Board

Some of you may, or may not be aware of my name and my involvement with the Message Board.

I'm Trish and I've been a Member off and on for several years and I came to the Board in search of answers and to meet fellow carers. My Hubby (Steve) had HD and he sadly died in 2011.

Hubs and me didn't have children so you could argue my connection with HD stopped when he died but I still care for his memory and wanted to give support where possible as the struggle goes on for others.

To this end, can I please ask you to consider opening; viewing; signing and clicking on the verification link for the below E-Petition.

E-PETITION HERE

We have so far got just under 3,000 signatures in the first six months and I would like to try doubling that in the last six months. It closes 21 Jan 2014 and I'd like to force a 'Response' to be taken seriously BY the Government.

It would be REALLY helpful if you could help me spread the Petition wider than this place and get links to it out there via FaceBook; Twitter or any other medium you can think of.



I also want to add that another Member has started a HD related E-Petition. Take a look below and please also sign etc that one

Joan's Petition
THANK YOU!


Trish
Background Blog
Background Book
__________________
I tried.
Trish is offline   Reply With Quote
Old 01-12-13, 12:36 PM   #2
Trish
Approved Member
 
Trish's Avatar
 
Join Date: May 2010
Location: England
Posts: 2,367
Default Re: Calling all Newbies

First of all, a big welcome to all Newbies!

Can I just bump up this one please?

We are now on 3,630 signatures but need many more


Quote:
Originally Posted by Trish View Post
Hello all and welcome to Messy Board

Some of you may, or may not be aware of my name and my involvement with the Message Board.

I'm Trish and I've been a Member off and on for several years and I came to the Board in search of answers and to meet fellow carers. My Hubby (Steve) had HD and he sadly died in 2011.

Hubs and me didn't have children so you could argue my connection with HD stopped when he died but I still care for his memory and wanted to give support where possible as the struggle goes on for others.

To this end, can I please ask you to consider opening; viewing; signing and clicking on the verification link for the below E-Petition.

E-PETITION HERE

We have so far got just under 3,000 signatures in the first six months and I would like to try doubling that in the last six months. It closes 21 Jan 2014 and I'd like to force a 'Response' to be taken seriously BY the Government.

It would be REALLY helpful if you could help me spread the Petition wider than this place and get links to it out there via FaceBook; Twitter or any other medium you can think of.



I also want to add that another Member has started a HD related E-Petition. Take a look below and please also sign etc that one

Joan's Petition
THANK YOU!


Trish
Background Blog
Background Book
__________________
I tried.
Trish is offline   Reply With Quote
Old 24-07-14, 08:18 PM   #3
BB
Approved Member
 
Join Date: Jul 2014
Location: st neots
Posts: 104
Default Re: Calling all Newbies

what is the petition for?
BB is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off

Forum Jump


All times are GMT +1. The time now is 06:32 PM.


About the HDA Message Board

A UK-based forum for people whose lives are affected by Huntington's disease and wish to share their experiences with others. Moderated by SHDAs from the HDA, a UK registered charity.

Please Remember

The HDA Message Board is not a substitute for professional advice. Consult a relevant professional before making decisions that could affect you or others.

Donate to HDA


Powered by vBulletin® Version 3.8.5
Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Registered Charity No. 296453. Website Content © HDA 2010

HDA