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Old 11-09-18, 07:28 PM   #11
angeldust
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Default Re: Upgrading the Message Board

Just my 2 cents on the private board question:

I have been searching for information about HD on and off for years and reading this board has not only helped me learn about the illness but has also been extremely helpful in understanding the little things.

And reading the point of view of the sufferrers themselves and gaining insight into what it's like for them is priceless.

If it were private to begin with, I would never have been able to see the support, I would never have known that a community exists behind the closed doors, I would never have registered.

TL;DR If it's possible to have a private category or subcategories where we could post sensitive issues while keeping the rest open to anyone who needs help/information, I believe that's the best of two worlds.

Surely a plugin exists for this?
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Old 12-09-18, 02:15 PM   #12
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Default Re: Upgrading the Message Board

Hi angeldust,

I have a beta version of the new message board up and running. If you (or anyone else) would like to try it out then send me a PM or email me at marc@codev.uk and I will send you account details to try it out.

I have set it up to be private for now but I appreciate that a lot of people found the message board in the past through search engines and making it private takes away from that. We have to balance that with people feeling comfortable enough to post in the first place. It's a difficult one.

I am wondering about having a few public topics and have the rest private. This is perfectly possible with the new software but it is just about how to tell people about this in a way that is straightforward.

I was thinking about having a guides category in which people can contribute helpful hints, useful websites and so on but tell people not to post anything personal there. Then the rest of the message board could be used for discussion as usual. But as I said it's how to do that in a person friendly way.

Let me know if anyone wants access to the test site or has any more ideas about the public/private split.

Marc
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Old 28-09-18, 04:47 PM   #13
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Default Re: Upgrading the Message Board

Hi everyone,

We're getting closer to launching the new message board. I wanted to write a short overview to tell people about the board and what to expect. Here is what I have at the moment. Any feedback would be welcome:



This is a message board operated by the Huntington’s Disease Association England & Wales for people whose lives are affected by Huntington’s disease and wish to share their experiences with others.

It is operated by us but it is powered by you, the people who use it. Help us maintain it as a great resource by always working to improve the discussion in some way, however small. The message board is a shared resource where people can help each other out or just share experiences – but please remember that other people’s experiences won’t always be the same as yours.

It isn’t a substitute for medical advice, your local Huntington’s association can point you to professional support. It is moderated and read by staff from the HDA, a UK registered charity.
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Old 02-10-18, 09:51 AM   #14
Monica
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Default Re: Upgrading the Message Board

Re the Private/not private question - I agree with the person who said they wouldn't have found much useful info if it had been private from the start. I didn't register for a long time because I was still coming to terms with the reality of the situation and was scared of 'going public'. Eventually I did register with an alias as my username and I feel that enables me to post messages fairly anonymously, though I admit that anyone who knows me well could probably tell which are my posts.
Overall though I think remaining NOT private is better for people seeking advice and information.
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