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Research, drugs, treatment, new diagnosis Forum for medical issues, and for the recently diagnosed (and families)

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Old 20-12-17, 05:41 PM   #1
keith marshall
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Default severe fatigue

Hi not posted on here for a while, my wife Jane was diagnosed in january this year although she has had symptoms for many years but was in denial.
most of her mums family have passed away as a result of huntingtons and her 54 year old cousin last year
my wife has recently got to the stage where she is constantly severely fatigued
this results in it being almost impossible to get food or drink down ,she can hardly keep her head up long enough to get a spoon in.she is also on her rare good days producing lots of mucus so when she does eat the mucus stops the food passing and eventually she will vomit most of what has gone down
any info on how to deal with this and the fatigue would be appreciated
yours keith
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Old 21-12-17, 08:00 PM   #2
Trish
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Default Re: severe fatigue

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Originally Posted by keith marshall View Post
Hi not posted on here for a while, my wife Jane was diagnosed in january this year although she has had symptoms for many years but was in denial.
most of her mums family have passed away as a result of huntingtons and her 54 year old cousin last year
my wife has recently got to the stage where she is constantly severely fatigued
this results in it being almost impossible to get food or drink down ,she can hardly keep her head up long enough to get a spoon in.she is also on her rare good days producing lots of mucus so when she does eat the mucus stops the food passing and eventually she will vomit most of what has gone down
any info on how to deal with this and the fatigue would be appreciated
yours keith
Hi Keith

I can't really give any advice on how to tackle the fatigue as I assume it's down to lack of nutrition and muscle tone and you guys are in a vicious circle bless you.

If you are not getting support from services such as the HDA specialist advisers; speech & language etc and even palliative care who may be able to sign off equipment at home it's worth having these guys in to assess. I'm guessing though that you have done as much as you can with the services available and we are a bit of a last resort.

I feel useless not being able to say do this, or do that, from my own personal experience with Steve but my heart goes put to both of you.
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