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Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD

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Old 08-01-13, 02:55 PM   #1
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Join Date: Jul 2010
Posts: 36
Default Testing...and the implications?


I'm considering being tested.....but wondered how knowing my status would affect practical things like - insurance, mortgage, jobs applications or trying to adopt???

Would knowing my status preclude me from these sorts of things....I know things like life insurance / critical care are out ...but what else do I neeed to consider???

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Old 08-01-13, 08:23 PM   #2
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Join Date: May 2007
Location: South Cumbria
Posts: 847
Default Re: Testing...and the implications?

This is quite a complex question and some aspects should be covered as part of the counseling. You could also talk with the HDA Regional Care Adviser for your area.
You may find some further advice on the HDYO web site.
I hope this helps.
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Old 11-01-13, 11:58 PM   #3
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Join Date: Jul 2012
Posts: 25
Default Re: Testing...and the implications?

Life insurance isn't out (although critical illness basically is). You may well pay a higher premium for being at risk or you may get lucky and not, like I've done. See my other posts on this because I must sound like a broken record on this topic!

Won't get into jobs (personal area - my own approach is to say absolutely nothing as I don't have to) or mortgages (as I understand it, generally not affected - we've been just about buying a house - long story - since I found out I was at risk and we didn't need to disclose the HD risk at all). However, as far as I am aware having briefly checked it out before, you can't adopt if you are either at risk or positive. If anyone's had any different experiences, I'm sure they'll advise. There are a lot of other options for trying to have kids.

As Dennis says, best to have a chat with your RCA or a person in a similar position.
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