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Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD

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Old 16-06-10, 02:07 PM   #1
Master of fact
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Default Affraid for my children.

My dad is being tested for HD. He had been told he had picks disease 2 years ago ( signs of dimentia, wandering, no sense or value of money) But have just been told he is being tested for HD. get results monday. 6 weeks ago dad fell and was taken to hospital. He was fine for two weeks and then went downhill so fast. He went from living alone coping to lying like a vegetable in hospital. He cant talk or eat.

Im 24 and have two amazing children of 3 and 1 years. I dont want them to have this disease, and want my dad to stop suffering, im so afraid. Its hard to type when you cry.
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Old 16-06-10, 06:02 PM   #2
just1moreperson
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Default Re: Affraid for my children.

Welcome to the board

I'd suggest taking things one step at a time right now, wait and see what your father's test results bring. If it is HD then obviously you will face the 50% risk and that's something you will have to come to terms with, but for now... lets see what the results say.

Tc, Matt.
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Old 16-06-10, 07:10 PM   #3
Scooby
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Default Re: Affraid for my children.

Quote:
Originally Posted by Master of fact View Post
My dad is being tested for HD. He had been told he had picks disease 2 years ago ( signs of dimentia, wandering, no sense or value of money) But have just been told he is being tested for HD. get results monday. 6 weeks ago dad fell and was taken to hospital. He was fine for two weeks and then went downhill so fast. He went from living alone coping to lying like a vegetable in hospital. He cant talk or eat.

Im 24 and have two amazing children of 3 and 1 years. I dont want them to have this disease, and want my dad to stop suffering, im so afraid. Its hard to type when you cry.
Hi there,
Firstly welcome to the board.
From what I know about picks (which isn't much but i have known people with picks) it is very similar in symptoms etc to HD but a much faster progression as in about 2 years life expectancy. I could be wrong here but it was my understanding that there is also the 50/50 chance of inheritance.

To be honest, what you have described above doesn't sound to me like the onset of HD but that's just my opinion. Therefore, I would tend to agree with Matt in that you should wait and see what the test reveals.

Hope all works out well for you and your family - fingers crossed.

Take care
San
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Old 16-06-10, 08:09 PM   #4
DH
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Default Re: Affraid for my children.

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Originally Posted by jacqueline View Post
I have never heard of PICKS though.
Me neither, I had to look it up. Doesn't sound very nice

Sorry for your news Master of Fact; I hope things turn out one way or another
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Fetchez la vache.
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Old 16-06-10, 09:30 PM   #5
Master of fact
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Default Re: Affraid for my children.

Thanks everyone. Im just so confused and feel like im in so many places at once. My dads mum died of Alziemers and his dad had parkinsons but died of Lung cancer. Im trying to stay positive.

When i look at my children i dont want them to suffer the way me and my brother have with my father.

we shall see.
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Old 16-06-10, 09:41 PM   #6
Anita
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Default Re: Affraid for my children.

Quote:
Originally Posted by Master of fact View Post
My dad is being tested for HD. He had been told he had picks disease 2 years ago ( signs of dimentia, wandering, no sense or value of money) But have just been told he is being tested for HD. get results monday. 6 weeks ago dad fell and was taken to hospital. He was fine for two weeks and then went downhill so fast. He went from living alone coping to lying like a vegetable in hospital. He cant talk or eat.

Im 24 and have two amazing children of 3 and 1 years. I dont want them to have this disease, and want my dad to stop suffering, im so afraid. Its hard to type when you cry.
I completely understand what you are going through right now. I found out that I'm HD+ less than a week ago. I have two beautiful children and it breaks my heart to think that what I have may affect them.

The people on here are amazing and so understanding of all the emotions I am feeling right now. Matts advice is good....see what Monday brings for you and know that you are not alone. Keep in touch, there is so much support here. xx
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Old 16-06-10, 10:48 PM   #7
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Default Re: Affraid for my children.

Hi Master of Fact

Welcome to the board

What an agonising time you are having, and the wait for test result horrendous.

So sorry that you have already been through so much.

Thinking of you all

Jillx
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Old 17-06-10, 04:47 PM   #8
Blondie
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Default Re: Affraid for my children.

Hello and welcome.As with the rest,see what the results say.Don't worry over your kids unless you really have to.It's not worth the pain,trust me
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Old 17-06-10, 10:21 PM   #9
Scarlett D.
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Default Re: Affraid for my children.

Quote:
Originally Posted by Master of fact View Post
My dad is being tested for HD. He had been told he had picks disease 2 years ago ( signs of dimentia, wandering, no sense or value of money) But have just been told he is being tested for HD. get results monday. 6 weeks ago dad fell and was taken to hospital. He was fine for two weeks and then went downhill so fast. He went from living alone coping to lying like a vegetable in hospital. He cant talk or eat.

Im 24 and have two amazing children of 3 and 1 years. I dont want them to have this disease, and want my dad to stop suffering, im so afraid. Its hard to type when you cry.
Hi Master of Fact, welcome to the board! Sorry to hear of you dad's ill health.

Like the others have said, try not to jump ahead of yourself too much, if you can...

My fingers are crossed for you and your loved ones. I will be thinking of you and your dad on Monday.

Take Care,
Scarlett
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