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Juvenile Huntingtonís Disease Forum concerning all aspects of JHD

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Old 22-11-16, 12:44 AM   #1
delfinium
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Join Date: Nov 2015
Posts: 7
Default Accepting HD

My 25yr old son was diagnosed last year with JHD. He has been having symptoms for over a decade, but as we knew nothing about HD his behaviour was a mystery to us until last November. Then the last 10 yrs fell into place.
I don't think he has accepted that he has HD. He will not discuss it with us, although he quite openly tells people that he has HD if they question why he never continued with studying. I feel that if he could speak to someone around his own age who is going through this he would accept it better. He is talking about getting married, having children and living happily ever after. I know this is good but it isn't realistic. I think all he wants is a relationship and intimacy as all his friends/ cousins are getting married and settling down. He doesn't have the motivation to go out and won't even shower unless I force him to! As a mother all you want is the best for your child and fulfill their every wish, but in this god forsaken condition, I can't even say there is any hope for him. He is not depressed and is quite happy watching tv all day. I have got him to do some voluntary work a couple of hrs a day for which I have to push him like a young school child.
I am struggling to find another young adult who would be willing to communicate with him. I don't know if any of this makes sense.
Any suggestions/experiences would be greatly appreciated
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Old 22-11-16, 01:24 AM   #2
Allan
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Location: Hastings, East Sussex, UK
Posts: 1,098
Default Re: Accepting HD

.
Hi there D

I just tried to send you a private message - but couldn't because you donít have it switched on.

If you would like to receive private messages you have to turn it on by:
  1. clicking "User Control Panel" at the top left,
  2. under "Settings and Options" click "Edit Options",
  3. scroll down to "Private Messaging" and tick the "Enable Private Messaging" box.

Okey doke.

.
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Old 23-11-16, 02:25 PM   #3
delfinium
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Join Date: Nov 2015
Posts: 7
Default Re: Accepting HD

Quote:
Originally Posted by Allan View Post
.
Hi there D

I just tried to send you a private message - but couldn't because you donít have it switched on.

If you would like to receive private messages you have to turn it on by:
  1. clicking "User Control Panel" at the top left,
  2. under "Settings and Options" click "Edit Options",
  3. scroll down to "Private Messaging" and tick the "Enable Private Messaging" box.

Okey doke.

.
Hi there Allan,
I have switched on my messages. I'd really appreciate any advice.
Thanks
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Old 01-12-16, 11:19 PM   #4
delfinium
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Join Date: Nov 2015
Posts: 7
Default Re: Accepting HD

Quote:
Originally Posted by Allan View Post
.
Hi there D

I just tried to send you a private message - but couldn't because you donít have it switched on.

If you would like to receive private messages you have to turn it on by:
  1. clicking "User Control Panel" at the top left,
  2. under "Settings and Options" click "Edit Options",
  3. scroll down to "Private Messaging" and tick the "Enable Private Messaging" box.

Okey doke.

.
I have sent you an email a couple of days ago. Thank you.
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