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Juvenile Huntington’s Disease Forum concerning all aspects of JHD

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Old 02-02-16, 12:21 AM   #1
nightowl
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Default other atypical neurological stuff...

hello all, a bit late but best wishes for 2016.

We are looking at our daughters behaviours she is now 6. There is a good possibility she will be assessed for Pathological Demand Avoidance. Her need to control, continued regular frustrations, meltdowns, sleep patterns, violence compulsive and 'stimming'behaviours are now such a frequent occurrenc its hard to recall the time they werent.

We met with genetics re JHD as its a risk, and we will keep contact but not enough for immediate concern as mostly behavioural. I just wondered if this type of range of issues were in hindsight the precursors to JHD? mum was JHD.

And if following p the PDA is a logical assessment to ask for given her age and our difficulties. PDA is itself a bit controversial but classed as part of the autistic spectrum but very different in how it shows mostly very bright articulate anxious ad obsessive need to control and avoid specific demands.

any ideas out there? many thanks wise ones.
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Old 03-02-16, 12:15 AM   #2
toosh
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Default Re: other atypical neurological stuff...

Quote:
Originally Posted by nightowl View Post
hello all, a bit late but best wishes for 2016.

We are looking at our daughters behaviours she is now 6. There is a good possibility she will be assessed for Pathological Demand Avoidance. Her need to control, continued regular frustrations, meltdowns, sleep patterns, violence compulsive and 'stimming'behaviours are now such a frequent occurrenc its hard to recall the time they werent.

We met with genetics re JHD as its a risk, and we will keep contact but not enough for immediate concern as mostly behavioural. I just wondered if this type of range of issues were in hindsight the precursors to JHD? mum was JHD.

And if following p the PDA is a logical assessment to ask for given her age and our difficulties. PDA is itself a bit controversial but classed as part of the autistic spectrum but very different in how it shows mostly very bright articulate anxious ad obsessive need to control and avoid specific demands.

any ideas out there? many thanks wise ones.
Hi Nightowl

I don't have children and not met anyone with JHD.
I do however have a relative who's hubby was in a previous marriage with two children.
The little girl was exactly as you describe. However she just grew out of it. She is now the most beautiful 24 year old. I hope its not JHD and there is another reason for the behavior x
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