Return to HDA home page HDA Message Board
HDA About the HDA HDA What is HD HDA Juvenile HD HDA Children & Young People HDA Professionals HDA Resources HDA Research HDA HDA News HDA Events HDA Contact the HDA HDA Home Page

Outside of office hours if you need someone to speak to you can phone the Samaritans on 116 123


Go Back   HDA Message Board > Message Board Categories > Testing, or at risk

Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD

Reply
 
Thread Tools Display Modes
Old 06-10-15, 02:04 PM   #1
Jules5288
Approved Member
 
Join Date: Sep 2014
Location: Wiltshire
Posts: 13
Default Argh

Hi all I tested positive for hd a few months ago now and I suppose I have just been plodding along and living life. Just recently I keep having these out bursts of anger and agression And I feel like I'm losing the plot. I know that everyone will probably just think I'm symptom hunting but I don't I know I guess just looking for anyone that has gone through this or seen a family member going through. At the moment I just feel so lost x
Jules5288 is offline   Reply With Quote
Old 06-10-15, 03:18 PM   #2
Melody
Approved Member
 
Join Date: Jun 2014
Location: South East
Posts: 341
Default Re: Argh

Quote:
Originally Posted by Jules5288 View Post
Hi all I tested positive for hd a few months ago now and I suppose I have just been plodding along and living life. Just recently I keep having these out bursts of anger and agression And I feel like I'm losing the plot. I know that everyone will probably just think I'm symptom hunting but I don't I know I guess just looking for anyone that has gone through this or seen a family member going through. At the moment I just feel so lost x
Hi Jules,

So sorry you are struggling at the moment.

Whilst aggression and outbursts can indeed be part of HD, they can also be triggered by stress and anxiety.

Coming to terms with a positive test is really hard and takes time.

It may be worth having a chat with your GP to see if a short course of tablets can help you ride the storm. Or a few more counselling sessions to help you come to terms with it all.

Hopefully others living with a positive test can help.

Take care. x
Melody is offline   Reply With Quote
Old 06-10-15, 05:49 PM   #3
Allan
Approved Member
 
Allan's Avatar
 
Join Date: Sep 2012
Location: Hastings, East Sussex, UK
Posts: 1,152
Default Re: Argh

.
Hi Jules

My son is a year older than you and was diagnosed with Young Onset HD in 2012. I see I responded to one of your earlier posts so I’ll forego the whole scenario.

In retrospect, we think that his behaviour started to change 10 years before the diagnosis. But, as Melody has indicated, the physical aggression and verbal outbursts could easily have been caused by other social and\or educational predicaments. Saying that, though, he has lost the majority of his friends over the years through antisocial and other such behaviour. Several people have recently mentioned here the fact that they have almost destroyed longstanding friendships too. So it’s not uncommon.

What you probably have to do is find ways of moving on with your life, becoming involved with new activities and gaining friends.

“Plodding along” is the hd-way of saying you’ve got no zest for life. If you can realise that you are “losing the plot” then maybe you can create a basic daily routine with a different activity each day – indoors or out.

What sort of interests do\did you have? Indoor\outdoor; sports active\sports viewing; specific interests\hobbies; random stuff; things you want to do, etc.

Whatever you might choose to do it’ll keep you busy and keep “the symptoms” at bay. They will just become “a fuzzy noise” in the background.

.
__________________
New Day; New Outlook; New Challenges; New Possibilities; New Outcomes; New Successes
Allan is offline   Reply With Quote
Old 06-10-15, 06:16 PM   #4
Cupcake
Approved Member
 
Join Date: Mar 2011
Location: East Anglia
Posts: 1,490
Default Re: Argh

Thinking of you, you have a lot to deal with, acceptance, why me etc., give yourself time, chat to your GP friends and family, and try not to worry. Xxxxxx
Cupcake is offline   Reply With Quote
Old 06-10-15, 06:27 PM   #5
Gabby
Approved Member
 
Join Date: Jan 2015
Location: Berkshire
Posts: 371
Default Re: Argh

Quote:
Originally Posted by Jules5288 View Post
Hi all I tested positive for hd a few months ago now and I suppose I have just been plodding along and living life. Just recently I keep having these out bursts of anger and aggression And I feel like I'm losing the plot. I know that everyone will probably just think I'm symptom hunting but I don't I know I guess just looking for anyone that has gone through this or seen a family member going through. At the moment I just feel so lost x
Its understandable you are having outbursts dealing with a positive result is a difficult time.
My hubbie tested positive 7 years ago and has been symptomatic since April last year . Symptomatic diagnosis is only given once movements are noted it seems .

You have to come to terms with it i think the first few months you almost live in denial so the anger and depression hits later . It could be a symptom hard to tell all i can say is live each day while you can easier said then done i know . push it to the back of your mind as far as you can and do all the things you
would like to do as far as finances permit .

Seek support from your GP , regional HDA specialist if necessary . My Hubbie went on Anti depressants after losing his mum and getting a positive result . We had 6 lovely years of doing as much as we could , a few down times , obviously but on the whole lovely memories ..
Good luck
Gabby is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off

Forum Jump


All times are GMT +1. The time now is 10:55 PM.


About the HDA Message Board

A UK-based forum for people whose lives are affected by Huntington's disease and wish to share their experiences with others. Moderated by SHDAs from the HDA, a UK registered charity.

Please Remember

The HDA Message Board is not a substitute for professional advice. Consult a relevant professional before making decisions that could affect you or others.

Donate to HDA


Powered by vBulletin® Version 3.8.5
Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Registered Charity No. 296453. Website Content © HDA 2010

HDA