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Old 28-03-17, 03:26 PM   #1
jonsalie
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Default Botox/Saliva

Has anyone any experience with using Botox to help control excessive saliva/dribbling. It is injected directly into the saliva glands and is reported to have good results. Sally's specialist palliative care Doctor is going to recommend this for her.
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Old 28-03-17, 06:44 PM   #2
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Default Re: Botox/Saliva

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Originally Posted by jonsalie View Post
Has anyone any experience with using Botox to help control excessive saliva/dribbling. It is injected directly into the saliva glands and is reported to have good results. Sally's specialist palliative care Doctor is going to recommend this for her.
I remembered somewhere in the past a mention of Botox so did a search on the word. This is the Thread I was thinking of.

Clicky HERE
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Old 28-03-17, 06:50 PM   #3
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Default Re: Botox/Saliva

On another side of it... has Sally ever been given
Scopoderm patches?
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Old 29-03-17, 12:14 AM   #4
jonsalie
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Default Re: Botox/Saliva

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On another side of it... has Sally ever been given
Scopoderm patches?
Yes for the past few years now, she takes one every day alternating from left neck to right neck, this means she has 2 ongoing at the same time: she also takes 2x5ml Glycopyrronium three time a day and 20ml Metoclopramide three times a day. When she first started these meds they did help, over the years they have become less effective and her saliva is causing her to choke and have excessive dribbling. As we cannot increase the meds she takes, the Doctors had a meeting and all agreed the Botox injections was the way to go. It has great success and no nasty side effects; all her meds are given through her peg as she cannot swallow.
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Old 31-03-17, 04:44 PM   #5
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Default Re: Botox/Saliva

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Originally Posted by jonsalie View Post
Yes for the past few years now, she takes one every day alternating from left neck to right neck, this means she has 2 ongoing at the same time: she also takes 2x5ml Glycopyrronium three time a day and 20ml Metoclopramide three times a day. When she first started these meds they did help, over the years they have become less effective and her saliva is causing her to choke and have excessive dribbling. As we cannot increase the meds she takes, the Doctors had a meeting and all agreed the Botox injections was the way to go. It has great success and no nasty side effects; all her meds are given through her peg as she cannot swallow.
I hope the botox goes well and she feels more comfortable because of the injections. I have seen videos of people using those suction tubes on patient with HD (USA if I recall right). Has that ever been mentioned?
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Old 02-04-17, 01:17 AM   #6
jonsalie
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Default Re: Botox/Saliva

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I hope the botox goes well and she feels more comfortable because of the injections. I have seen videos of people using those suction tubes on patient with HD (USA if I recall right). Has that ever been mentioned?
Hi Trish

I have (on loan from hospital) two LSU machines to use when and if needed; they have saved Ellen from choking on more than one occasion. I asked the Dr last week if it was viable to have an airtube in her throat, or some form of tube so she can breath properly when choking, the Dr told me it was not a good idea as it would cause Ellen unnecessary stress. I have done a bit of reading on the Botox treatment and from what I can see it is very effective with little or no risk.
All we can do is try it, I will update when it has been done.
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Old 03-04-17, 06:23 PM   #7
Trish
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Default Re: Botox/Saliva

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Originally Posted by jonsalie View Post
Hi Trish

I have (on loan from hospital) two LSU machines to use when and if needed; they have saved Ellen from choking on more than one occasion. I asked the Dr last week if it was viable to have an airtube in her throat, or some form of tube so she can breath properly when choking, the Dr told me it was not a good idea as it would cause Ellen unnecessary stress. I have done a bit of reading on the Botox treatment and from what I can see it is very effective with little or no risk.
All we can do is try it, I will update when it has been done.
Here's hoping the Botox works out.

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Old 27-05-17, 09:09 PM   #8
jonsalie
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Default Re: Botox/Saliva

Update 27/5/17
It's been 4 weeks since Sally had the first small dose of botox in the saliva glands under her ear each side of her face. It was pain free and she had no side effects. I gave her a couple of diazepam tablets an hour before just to calm her down a bit. The effect was very quick, we noticed a reduction in saliva after a couple of hours. Now 4 weeks later the effect is wearing off as we were told it would, it is time for a second more stronger dose that will last longer.
Other than controlling her excessive saliva; it has also helped with her sleep apnea, possibly because she is not fighting trying to swallow the excessive saliva?
All in all, I think it was the right thing for Sally to have the injections, it has improved her quality of life considerably.
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Old 28-05-17, 08:07 AM   #9
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Default Re: Botox/Saliva

Thank you for update. Good news! Here's hoping it continues to be so beneficial.
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