Return to HDA home page HDA Message Board
HDA About the HDA HDA What is HD HDA Juvenile HD HDA Children & Young People HDA Professionals HDA Resources HDA Research HDA HDA News HDA Events HDA Contact the HDA HDA Home Page

Outside of office hours if you need someone to speak to you can phone the Samaritans on 116 123


Go Back   HDA Message Board > Message Board Categories > Juvenile Huntington’s Disease

Juvenile Huntington’s Disease Forum concerning all aspects of JHD

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 23-06-16, 10:49 PM   #1
nightowl
Approved Member
 
Join Date: Jul 2013
Location: Please ask.
Posts: 43
Send a message via Yahoo to nightowl
Default Visit to HD symptomatic birth relative?

Any experience of children meeting a significant adult relative ( for the first time)who is fairly advanced in HD symptoms. Chorea. Voice.mobility limited etc. Not sure about behavioural, but is in supported housing.
It maybe the only time they meet if we ask for it to go ahead. The children have had no exposure to people with HD symptoms nor has it been voiced as an illness or possibility for them yet.They are 6 and 4. Have had access to and provision for kids with special needs due to elder one being truly very aggressive , demanding, and controlling etc.(no diagnosis)
Just pondering....it .thanks all. Its not something I can put out there for general chit chat.
nightowl is offline   Reply With Quote
 

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off

Forum Jump


All times are GMT +1. The time now is 11:16 PM.


About the HDA Message Board

A UK-based forum for people whose lives are affected by Huntington's disease and wish to share their experiences with others. Moderated by SHDAs from the HDA, a UK registered charity.

Please Remember

The HDA Message Board is not a substitute for professional advice. Consult a relevant professional before making decisions that could affect you or others.

Donate to HDA


Powered by vBulletin® Version 3.8.5
Copyright ©2000 - 2017, Jelsoft Enterprises Ltd.
Registered Charity No. 296453. Website Content © HDA 2010

HDA