Curse in Verse - the poetry of HD

DH · 20-10-09, 01:08 PM

As many of you know, Trish (Formerly AKADT, nee DaintyTrish) is a full time carer for her husband who is mid stages HD. In between responding to his many needs she has been putting pen to paper - or at least, finger to keyboard - and produced her first volume of poetry based on her life with HD. In all there are some 41 poems in 6 sections that touch upon the many and varied aspects of HD covering different aspects of the illness from the points of view of the carer; sufferer; family and the public perception in general as she sees it.

Copies can be requested through the HDA priced £2.50 [+ post and packaging]. This was the price setby the HDA, but I personally think it's worth at least a fiver, probably more like a tenner. The price they're asking for barely covers the printing... Anyway, I shall leave that to your respective consciences.

Once hosting issues are sorted out there should be as e-book version as well.
Alternatively you can obtain a copy in MS Word format as an e-mail from Trish via her justgiving page: http://www.justgiving.com/Trish-Dainton/ Donations as suggested above.

An example poem is given below, with an intro by Trish:

"Those of you who knew me from my Messy Board days and my blog ( http://www.justgiving.com/daintytrish/ ) will know OCD is a big part of my hubby's HD. This was written as a reminder to me that I need to cut him some slack bless him!"

Quote:

The OCD Plea

Obsessive Compulsive Disorder,
Just another symptom we get.
The rituals we need, within our lives,
Particular needs to be met.

My partner just don’t understand it,
She thinks that I’m being a pain.
Doesn’t she care, that by placing that there,
I must start this all over again?

The socks go on after the trousers,
The shirt goes on after the shoes.
It’s not like she’ll die, if she doesn’t know why,
This particular order I use.

So why does she still go on moaning?
It’s not her who has this HD.
The rituals are my way of coping,
So why can’t she just let me be?

Trish (AKA DT/DaintyTrish)

just1moreperson · 30-10-09, 02:21 AM

They're very good, I like them

hdauk · 23-11-09, 12:24 PM

Quote:

Originally Posted by just1moreperson

They're very good, I like them

Just to say a huge thank you to those of you who have donated so far to my Curse in Verse project, either via the JG Page or buying through the HDA.

I also wanted to flag up I've been looking at ways to get the message spread as widely as possible and I hit upon a site called Triond. It's one of those on-line publishing sites where they make a huge fortune out of selling ad space and contributors make peanuts (let's just say I wont be able to fund the HDA's costs out of it lol) but it's still a great way of getting access to a wider/international audience.

The link below takes you to just one of the poems but all 41 are uploaded now. Feel free to dip into the poems by clicking on my name above the poem which will take you into my page. Comments are also welcome as it's good to have other people's perspective on things. If, having viewed the poems, you would care to donate to my JG Page that would be cool too but don't feel obliged to. Even just clicking on the poems you are helping raise funds ( a bit like everyclick insofar as payments are based on views).

http://authspot.com/poetry/curse-in-...cheeky-monkey/

If you like the sound of Triond to submit articles yourself then why not give it a go? And no... I don't get commission for recommending

Hard copies of Curse in Verse are still available through the HDA with electronic (Word Version) copies through me as per the JG Page. http://www.justgiving.com/Trish-Dainton

Best wishes

Trish x "

DH · 08-01-10, 07:05 PM

Bumps from Trish

I thought I’d take the opportunity to bump up this thread for the benefit of new members. Many thanks to DH for helping with posting.

The following links are to poems created as part of an awareness project started by DH with a view to using the London Underground for a poster campaign. Apart from wanting to raise awareness for those not familiar with HD itself, I hope some of the information in the description part is useful to/resonates with those in the HD community also.

I have split the poems into six groups and posted separately in here. All 41 poems are reproduced in an A4 size copied and comb-bound book being kindly sent out through the HDA price £2.50. http://www.hda.org.uk/shop/hda-books.php

For those of you with FaceBook, please feel free to add links if you want to help with raising the awareness of a particular poem or theme.

I hope this also encourages others to get creative and use sites like Triond. One of my poems is called ‘Big Brother’. I’ve noticed the ‘hits’ have suddenly shot up on that one. I assume it must be from people searching for info on the latest celeb BB lol...

Theme 1 – MIND THE AWARENESS GAP

THE TEST

http://authspot.com/poetry/curse-in-verse-the-test/

THE SUFFERER

http://authspot.com/poetry/curse-in-verse-the-sufferer/

THE GENERATIONS

http://authspot.com/poetry/curse-in-...e-generations/

THE CARER

http://authspot.com/poetry/curse-in-verse-the-carer/

THE BABY

http://authspot.com/poetry/curse-in-verse-the-baby/

THE AWARENESS DREAM

http://authspot.com/poetry/curse-in-...areness-dream/

THE HOPE

http://authspot.com/poetry/curse-in-verse-the-hope/

DH · 08-01-10, 07:13 PM

Theme 2 – THE APPLIANCE OF SCIENCE

THE FIGHTER

http://authspot.com/poetry/curse-in-verse-the-fighter/

THE LAB RAT

http://authspot.com/poetry/curse-in-verse-the-lab-rat/

THE RESEARCHER

http://authspot.com/poetry/curse-in-...he-researcher/

THE COCKTAIL

http://authspot.com/poetry/curse-in-verse-the-cocktail/

THE HD + OPTIMIST

http://authspot.com/poetry/curse-in-...e-hd-optimist/

DH · 08-01-10, 07:15 PM

Theme 3 – BEFORE THE STORM

THE DENIAL (SOFT)

http://authspot.com/poetry/curse-in-...e-denial-soft/

THE DENIAL (HARD)

http://authspot.com/poetry/curse-in-...e-denial-hard/

THE TEENAGER’S AWAKENING

http://authspot.com/poetry/curse-in-...ers-awakening/

THE TEACHER

http://authspot.com/poetry/curse-in-verse-the-teacher/

THE DRIVER

http://authspot.com/poetry/curse-in-verse-the-driver/

THE PANIC BUTTON

http://authspot.com/poetry/curse-in-...-panic-button/

THE BUCKET LIST

http://authspot.com/poetry/curse-in-...e-bucket-list/

DH · 08-01-10, 07:17 PM

DH · 08-01-10, 07:19 PM

Theme 5 – ADAPT AND SURVIVE

THE OCD PLEA

http://authspot.com/poetry/curse-in-verse-the-ocd-plea/

THE STUCK RECORD

http://authspot.com/poetry/curse-in-...-stuck-record/

THE HELP

http://authspot.com/poetry/curse-in-verse-the-help/

THE IMPATIENT PATIENT

http://authspot.com/poetry/curse-in-...tient-patient/

THE READER

http://authspot.com/poetry/curse-in-verse-the-reader/

THE MAGIC OF MUSIC

http://authspot.com/poetry/curse-in-...agic-of-music/

THE BEST IS YET TO BE

http://authspot.com/poetry/curse-in-...-is-yet-to-be/

DH · 08-01-10, 07:20 PM

Theme 6 – LOW SOCIETY

THE INSURANCE SALESMAN

http://authspot.com/poetry/curse-in-...ance-salesman/

THE RETURN TO WORK INTERVIEW

http://authspot.com/poetry/curse-in-...ork-interview/

THE GAY
http://authspot.com/poetry/curse-in-verse-the-gay/

BIG BROTHER

http://authspot.com/poetry/curse-in-verse-big-brother/

THE HD SHOPPING TROLLEY

http://authspot.com/poetry/curse-in-...pping-trolley/

THE BOSS (PART 1)

http://authspot.com/poetry/curse-in-...e-boss-part-1/

THE BOSS (PART 2)

http://authspot.com/poetry/curse-in-...e-boss-part-2/

DH · 15-03-10, 08:39 PM

Not bumped this thread for a while, soooooo....... bump