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Genealogy, children, PGD Discuss family and preimplantation genetic diagnosis issues

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Old 08-10-18, 09:59 PM   #1
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Join Date: Nov 2016
Location: Petts Wood
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Default What to stay, when to say

I just wondered how people have broached issues with their small children. My wife has HD and we haven't really said much to our 5 year old daughter. She knows mummy's a little poorly at times but, in recent weeks, she's started to pick up on mummy's mood - and even told her friend's mum that her mum is lazy and just shouts. I know I need to say something but don't know exactly what to say. How do you explain this to a 5 year old? I'm still trying to work it out.
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Old 09-10-18, 12:13 AM   #2
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Location: Hastings, East Sussex, UK
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Default Re: What to stay, when to say

Hi Fola

I haven't checked to see if all the links are still operating or up-to-date but they seem to have quite a bit that might help you - or some good ideas for broaching the subject:

Some online reading – websites and books are dated, the book "Huntington’s and Me" (for young people) was published almost 20 years ago.

These are current and available online to read:

Talking With Kids (28 pages)

Talking With Kids About HD (112 pages)

Talking to kids about HD

Talking to Children About Huntington’s Disease

Best wishes ...

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