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Fundraising, events, summer camps, support groups Tell us about your UK fundraising activities and local meetings

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Old 25-11-17, 05:12 PM   #331
banda
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Default Re: Curse in Verse - the poetry of HD

Bless you and thank you for the blog...xx
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Old 27-11-17, 07:15 PM   #332
Trish
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Default Re: Curse in Verse - the poetry of HD

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Bless you and thank you for the blog...xx
Thank you Banda!

I hope that, apart from being something to keep Steve's memory alive, people find it a source of information which can help along the way xx


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Today I have come in to put up a link to my latest blog post

REGISTRATIONS & MISCOMMUNICATIONS

It would have been mine and Steve's 29th wedding Anniversary today.

clicky HERE if you would like to take a look.
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Old 21-12-17, 09:45 PM   #333
Trish
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Default Re: Curse in Verse - the poetry of HD

May I be the first to wish all my readers a Merry Christmas!

Each year I drag out a poem I wrote a while back. This year there is at least a bit of hope for future generations with the announcement of the Breakthrough in potential treatment to halt the disease



Twas Christmas Day on Message Board,
And cheers were heard all around,
A new thread had appeared on site,
It read 'HD CURE FOUND!'

The Member's name was 'Santa Claus',
He'd opened up a letter,
The child who wrote it asked one thing,
'Please make my daddy better'

It touched his heart that this small child,
Was not like other boys,
He didn't want a list of things,
Like others wanting toys.

So Santa went to Tinkerbell,
Who got down off the tree,
And asked if she had any thoughts,
On how to cure HD.

Tinker said to Santa Claus,
You should have time to spare,
To smuggle out all research notes,
Whilst leaving presents there.

And having dashed around the world,
Removing files from shelves,
He emptied sacks for scrutiny,
By Tinker and the elves.

Combining their collective skills,
They sorted all the data,
And with a wave of wand or two,
The cure came minutes later.

Tinker ran to Santa Claus,
“Eureka” was her cry,
And Santa loaded up the sleigh,
With sacks all piled up high

He dashed around the world again,
Returning files all round,
But on each desk he left a file,
With what his team had found.

Now one stop left before return,
Much to Rudolph’s joy,
He paid a visit leaving toys,
For one unselfish boy.


Here's hoping 2018 brings more awareness and options for those fighting HD right now.
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Old 24-12-17, 08:59 AM   #334
Crystal
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Posts: 237
Default Re: Curse in Verse - the poetry of HD

Quote:
Originally Posted by Trish View Post
May I be the first to wish all my readers a Merry Christmas!

Each year I drag out a poem I wrote a while back. This year there is at least a bit of hope for future generations with the announcement of the Breakthrough in potential treatment to halt the disease



Twas Christmas Day on Message Board,
And cheers were heard all around,
A new thread had appeared on site,
It read 'HD CURE FOUND!'

The Member's name was 'Santa Claus',
He'd opened up a letter,
The child who wrote it asked one thing,
'Please make my daddy better'

It touched his heart that this small child,
Was not like other boys,
He didn't want a list of things,
Like others wanting toys.

So Santa went to Tinkerbell,
Who got down off the tree,
And asked if she had any thoughts,
On how to cure HD.

Tinker said to Santa Claus,
You should have time to spare,
To smuggle out all research notes,
Whilst leaving presents there.

And having dashed around the world,
Removing files from shelves,
He emptied sacks for scrutiny,
By Tinker and the elves.

Combining their collective skills,
They sorted all the data,
And with a wave of wand or two,
The cure came minutes later.

Tinker ran to Santa Claus,
“Eureka” was her cry,
And Santa loaded up the sleigh,
With sacks all piled up high

He dashed around the world again,
Returning files all round,
But on each desk he left a file,
With what his team had found.

Now one stop left before return,
Much to Rudolph’s joy,
He paid a visit leaving toys,
For one unselfish boy.


Here's hoping 2018 brings more awareness and options for those fighting HD right now.

Thank-you for your poem again this year Trish.....more meaningful than ever now for all our families.

I'm just going to try and send a late email to Santa now....missed the last post!

My very best wishes for Christmas and a New Year.
Crystal x
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Old 24-12-17, 02:54 PM   #335
Trish
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Default Re: Curse in Verse - the poetry of HD

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Thank-you for your poem again this year Trish.....more meaningful than ever now for all our families.

I'm just going to try and send a late email to Santa now....missed the last post!

My very best wishes for Christmas and a New Year.
Crystal x
Thank you Crystal.

Best wishes to you too. xx

PS
I think Santa works on the same rota as a HD Carer. 48 hours a day and 14 days a week to fit in everything needed for two or more people's quality of life so you should still be okay
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Old 01-01-18, 10:57 AM   #336
Trish
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Default Re: Curse in Verse - the poetry of HD

Happy New Year everybody!

Thank you to everyone who participated in this Thread in 2017; who read My Blog; who bought/read My Book; who reached out and said hello on social media or anywhere else for that matter.

Here's to a productive 2018 for all of us.
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Old 01-01-18, 11:10 PM   #337
Gabby
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Default Re: Curse in Verse - the poetry of HD

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Originally Posted by Trish View Post
Happy New Year everybody!

Thank you to everyone who participated in this Thread in 2017; who read My Blog; who bought/read My Book; who reached out and said hello on social media or anywhere else for that matter.

Here's to a productive 2018 for all of us.
Happy New year Trish xx
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Old 01-01-18, 11:47 PM   #338
Crystal
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Default Re: Curse in Verse - the poetry of HD

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Happy New Year everybody!

Thank you to everyone who participated in this Thread in 2017; who read My Blog; who bought/read My Book; who reached out and said hello on social media or anywhere else for that matter.

Here's to a productive 2018 for all of us.

Just a little thank-you too Trish, for your constant contribution on the MB and help and advice, to all those of us trying to make sense of our HD lives!
May 2018 provide a little happiness somehow, somewhere for everyone.
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Old 02-01-18, 09:24 AM   #339
banda
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Default Re: Curse in Verse - the poetry of HD

Happy new year to you all, hoping 2018 is as happy as it can be xx
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Old 04-01-18, 12:10 PM   #340
Trish
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Default Re: Curse in Verse - the poetry of HD

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Happy New year Trish xx
Quote:
Originally Posted by Crystal View Post
Just a little thank-you too Trish, for your constant contribution on the MB and help and advice, to all those of us trying to make sense of our HD lives!
May 2018 provide a little happiness somehow, somewhere for everyone.
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Happy new year to you all, hoping 2018 is as happy as it can be xx
Thank you everyone!

JUST KEEP SWIMMING as they say...
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