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Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD

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Old 17-03-16, 09:40 PM   #1
Ashyrose7
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Join Date: Nov 2015
Posts: 29
Default Yet another update

Hello guys, its been a while since I last came on here.
After another 45 minutes of my councillers trying to change my mind I finally had my HD test yesterday.

Now it feels real, and even though there's a 75% chance of me not having it I am extremely nervous.
Even more nervous because I know when I'm getting my results (6th April) and I know my counciller is going to be watching me like a hawk to judge my reaction because she doesn't think I should of had the test yet.

I suppose it can only go one of two ways...

Ashy
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Old 18-03-16, 12:58 AM   #2
toosh
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Join Date: Jun 2011
Location: North East
Posts: 570
Default Re: Yet another update

Quote:
Originally Posted by Ashyrose7 View Post
Hello guys, its been a while since I last came on here.
After another 45 minutes of my councillers trying to change my mind I finally had my HD test yesterday.

Now it feels real, and even though there's a 75% chance of me not having it I am extremely nervous.
Even more nervous because I know when I'm getting my results (6th April) and I know my counciller is going to be watching me like a hawk to judge my reaction because she doesn't think I should of had the test yet.

I suppose it can only go one of two ways...

Ashy
x
Hi Ashy

Can you explain the 75% chance of not being positive?
I thought it was 50/50 or are you in the grey area?
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Old 19-03-16, 12:44 AM   #3
JessicaG
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Join Date: Mar 2016
Posts: 4
Default Re: Yet another update

Quote:
Originally Posted by Ashyrose7 View Post
Hello guys, its been a while since I last came on here.
After another 45 minutes of my councillers trying to change my mind I finally had my HD test yesterday.

Now it feels real, and even though there's a 75% chance of me not having it I am extremely nervous.
Even more nervous because I know when I'm getting my results (6th April) and I know my counciller is going to be watching me like a hawk to judge my reaction because she doesn't think I should of had the test yet.

I suppose it can only go one of two ways...

Ashy
x
Hi keeping my fingers crossed for you today is my first time here I'm expecting my results April 13th, I'm not sure how I feel to be honest I think I'm ready to hear the worst but people keep telling me I won't be.
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Old 23-03-16, 05:00 PM   #4
Ashyrose7
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Join Date: Nov 2015
Posts: 29
Default Re: Yet another update

Quote:
Originally Posted by toosh View Post
Hi Ashy

Can you explain the 75% chance of not being positive?
I thought it was 50/50 or are you in the grey area?
My grandmother had it so I'm at a 25% risk atm coz it's not clear whether my mother has it and she does not wish to find out
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Old 23-03-16, 05:00 PM   #5
Ashyrose7
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Join Date: Nov 2015
Posts: 29
Default Re: Yet another update

Quote:
Originally Posted by JessicaG View Post
Hi keeping my fingers crossed for you today is my first time here I'm expecting my results April 13th, I'm not sure how I feel to be honest I think I'm ready to hear the worst but people keep telling me I won't be.
Thank you. I feel exactly the same.
I'll keep you in my thoughts
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