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Carers, things that have helped Share your experiences of caring, and pass on practical advice and helpful tips

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Old 22-02-08, 09:59 PM   #1
sandy
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Default Depression

On a recent trip to HD clinic for our half yearly check up i began to break down during talks, something that has not happened before, we have been going for several years ever since my wife was diagnosed and i have always been in control, then three weeks later while talking to a Dr at one of the trials we are involved in the same thing happened, now i know its only normal to get emotional but I'm worried that it has just started affecting me in this way, can anyone offer some advise
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Old 23-02-08, 12:28 AM   #2
frankie
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Default Re: Depression

Hi Sandy,

Personally I think it is all very emotional and sometimes we are stronger and more able to cope. When it becomes too hard to bear this is when depression can set in. I would hope that we would learn to adjust , but this isnt always the case. It can suddenly come from no where ,just raw grief and feelings of unfairness overwhelm us.

Hopefully this will pass soon Sandy . If your wife does not have symptoms you will probably get used to living "normally" again. Although its not quite normal when you are involved in trials, but very worthwhile.
Have you had counselling? Maybe you need to talk to someone about your feelings.

Sometimes the reality of it all is very difficult. Perhaps you can have a chat with one of the Doctors or your own GP. Worrying about a loved one and the future can be a heavy burden to carry.
Take care
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Old 23-02-08, 03:22 PM   #3
angelad
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Default Re: Depression

Hi SANDY
Think this is normal.I have my mum in a care home as she got bad with HD i year ago.I always thought i was okay and could cope but recently i have been very tearful.I think just sometimes you feel its all on top of you.The silly thing is i cry when i think im felling okay (if that makes sense )I break down crying at the slightest thing.Try and take time out easier said than done i know but i try and have an hour to myself.Hope this helps
Angela
xx
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Old 23-02-08, 04:20 PM   #4
myrna
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Default Re: Depression

I think that some of our emotions are brought on by grieving in advance. HD is so sad & watching those we love lose their abilities is a constant loss to us as much as to them & constantly reminds us of what is ahead. It would probably be abnormal of us if we wasn't affected in this way at least at some point during the duration. Accept it & allow yourself to be this way. Find things that you can throw yourself into when it is necessary to take your mind of it all.....DIY, hobbies, or socialising for instance (Though I don't advise too much alcohol...bad habit to break. lol)
When it's needed, you go ahead & indulge those feelings. It's essential to let them out on occasions. A good cry is good for you & releases pent up emotions. If ever you need to talk, you will always find someone here to off load to. Make time for yourself & take care of you too.

Best wishes
Myrna
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Old 23-02-08, 07:31 PM   #5
just1moreperson
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Default Re: Depression

No shame in having a cry, we all do it, i know i do every now and again. Perhaps its best for you to let it out anyway, just not in the middle of a conversation. But these things cannot be helped.

Shows you care :)
tc Matt.
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Old 23-02-08, 07:53 PM   #6
poppysox
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Default Re: Depression

hi sandy
i have cried many times since my sister got diagnosed..... who can blame us eh? i think its all part and parcel of this terriible disease for the sufferers and carers alike... just wanted to say you're not alone...
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Old 26-02-08, 07:31 PM   #7
sandy
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Default Re: Depression

Thank you all for your thoughts, i suppose just being aware of deppression is a good sign as it seems to creep up on you and before you know it all is grey. Will try harder
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Old 26-02-08, 09:10 PM   #8
just1moreperson
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Default Re: Depression

Well as they said on the news today, those depression pills don't do a great deal. Its all in the mind so stay strong Sandy.

Tc , Matt.
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Old 28-02-08, 05:47 PM   #9
Yve
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Default Re: Depression

Hi Sandy,

It is so strange but the same thing happend to me on our visit to the clinic in January. My husband Ed' was diagnosed with HD over 5 years ago and my attitude has always been that we have to just get on with and live each day as it comes, I believe that a positive attitude is the only way I can cope with this dreadful disease.

I am normally really chatty at our visits and want an update on everything that is happening - and when we started talking I totally lost the plot! weeping, sobbing on the doctor's shoulder - I was a total wreck - I do not know what triggered this reaction - but felt so guilty for losing control!

As for crying - as my Nan used to say "better out than in"!

Take care - and don't forget Sandy you are not alone!

Lol
Yve
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Old 28-02-08, 10:59 PM   #10
missyd
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Default Re: Depression

i cried today at my kids school sometimes it just hits you. the teacher was telling me that my son wasnot engaging as much as he was before christmas .I immediately had the worst possible thought something which is my worst nightmare.I know it could be any number of things but my first thought was juvenile hd and i started to cry

I think its definitely better to cry and let it out rather than botle it up and you shouldn,t feel bad for doing it .The professionals especially are probably used to all kinds of outbursts so don't worry about it

take care

missy d
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