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Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD

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Old 18-03-16, 12:40 AM   #1
crystalmonger
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Default Should I tell my family Im getting tested?

I am getting tested and was wondering if I should tell my whole family I'm getting tested? I would usually want to spare them from any pain and not involve them but have been thinking maybe it's my turn to lean on them. What do I do?
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Old 19-03-16, 11:04 AM   #2
shiraz
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Default Re: Should I tell my family Im getting tested?

That's a difficult question....it all comes down to you knowing yourself best and your family and their circumstances/what their reaction would likely be. Some people want the support of a close friend, others don't want to involve family, others just involve their partner. Some go through it alone coz they cope better that way and don't want friends to know. It's a dilemma only you can address. If you have siblings who are also at risk but untested then they might feel like a whole can of worms is being opened up....and they are being forced to confront their own fears kind of thing before they are ready. Go with your heart...and of course, good luck with your test. When is it? Have you had counselling, and raised this question?
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Old 19-03-16, 01:08 PM   #3
Cupcake
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Default Re: Should I tell my family Im getting tested?

I agree with Shiraz it is your own personal choice, please make sure you get the counselling as it is a big secret to bear on your own, if your test positive. I am wondering if your family hide from the HD, if it is something you don't feel comfortable with discussing.

Good luck xxxx and keep us posted.
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Old 19-03-16, 08:43 PM   #4
Lizerd
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Default Re: Should I tell my family Im getting tested?

Like the others have said it your choice, every family communicates and supports each other in different ways- or not at all. It was unclear if this is a new issue within your family so you have to also understand they are going through some stuff too possibly.
The genetic counselling takes some time I believe (just doing it myself now) so you could start the process and see how it makes you think about it all- you might want/need help to deal with it
Hope it all goes well with whatever you decide

Lizerd x
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Old 26-04-16, 07:04 PM   #5
oshea
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Default Re: Should I tell my family Im getting tested?

It so hard to decide who to let in your inner circle.
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