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Research, drugs, treatment, new diagnosis Forum for medical issues, and for the recently diagnosed (and families)

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Old 30-01-16, 02:27 AM   #11
Allan
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Default Re: Talking therapies

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Originally Posted by toosh View Post
The HDQol Questionaire is interesting. Not seen it before. Do you know who completes them and who analyses the data ftom them? Wonder if its the European HD network?
Wotcha

The HDQoL© is a an initiative of the Quality of Life Working Group of the European Huntington’s Disease Network (EHDN). This international project is funded by the EHDN, led by Dr Aileen Ho as Principal Investigator, and based at the University of Reading, U.K.

http://centaur.reading.ac.uk/26368/1/hocaoglu_2012_The_Huntington's_Disease_health-related_Quality_of_Life_questionnaire_(HDQoL)_a_di sease-specific_measure_of_health-related_quality_of_life.pdf

http://www.personal.reading.ac.uk/~sxs04akh/hdqol/ho%202009%20Health-related%20quality%20of%20life%20in%20Huntington's% 20disease%20Which%20factors%20matter%20most.pdf
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Old 30-01-16, 01:16 PM   #12
Gabby
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Default Re: Talking therapies

Hubbie has had two sessions with Aileen Ho at the Reading University should have been 4 but 2nd week week sore shoulder and 4th week sore knee ( marathon training ) seem he can't do appointments with these things ! Aileen has been fab and very understanding back again tuesday Knee permitting and we are having a chat so may find out a bit more .

take care x
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Old 30-01-16, 01:31 PM   #13
Allan
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Default Re: Talking therapies

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...... seems he can't do appointments with these things!
Hi Gabby

That's really interesting. S is exactly the same. If he has another issue or problem, medical or otherwise, he cannot attend the appointment - even his 6 monthly sessions in London with Ed Wild, which he really enjoys.

It's almost like the inability to multitask. I can't do that because of this.


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Old 30-01-16, 01:47 PM   #14
Gabby
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Default Re: Talking therapies

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Hi Gabby

That's really interesting. S is exactly the same. If he has another issue or problem, medical or otherwise, he cannot attend the appointment - even his 6 monthly sessions in London with Ed Wild, which he really enjoys.

It's almost like the inability to multitask. I can't do that because of this.


.
yes seem just that the focus is all on that one issue .

Gabby
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