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Old 30-05-10, 03:46 PM   #1
Trish
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Default choking/Vomitting

I know the below may sound obvious/common sense but the SLTs don't always tell you and after years of dashing to find an empty bowl when Hubs was looking ominous I discovered it's easier to keep a stack of kidney bowls strategically placed to be at hand. They are also small enough to pack in a bag when going out.

The shape makes them a lot easier to use in bed given they tuck neatly under the chin.

I buy disposable ones but there are the traditional steel versions and now polypropylene.

A couple of sites are given below to demonstrate the costs but other suppliers are available.

http://www.pubshop.co.uk/catalog/hos...5-p-11652.html

http://www.hssproducts.co.uk/acatalo...nd_Dishes.html

Since using them I noted Hubs is less stressed too when having a coughing fit.
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Old 30-05-10, 05:45 PM   #2
kayleigh
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Default Re: choking/Vomitting

Quote:
Originally Posted by Trish View Post
I know the below may sound obvious/common sense but the SLTs don't always tell you and after years of dashing to find an empty bowl when Hubs was looking ominous I discovered it's easier to keep a stack of kidney bowls strategically placed to be at hand. They are also small enough to pack in a bag when going out.

The shape makes them a lot easier to use in bed given they tuck neatly under the chin.

I buy disposable ones but there are the traditional steel versions and now polypropylene.

A couple of sites are given below to demonstrate the costs but other suppliers are available.

http://www.pubshop.co.uk/catalog/hos...5-p-11652.html

http://www.hssproducts.co.uk/acatalo...nd_Dishes.html

Since using them I noted Hubs is less stressed too when having a coughing fit.
thannks forr puttingg this up itts quite helfuul forr mme as i chhooke quite a llott now:)
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Old 31-05-10, 01:14 AM   #3
Trish
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Default Re: choking/Vomitting

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thannks forr puttingg this up itts quite helfuul forr mme as i chhooke quite a llott now:)
You are welcome hunny.

I hope you and others can take from my attempts to help one thing...

HD is an *** whichever way you look at it. But... if us carers can find simple ways to help the carer/the person with HD feel less stressed then it is a manageable disease.

You are not a burdon to Tommy. It's simply a case of finding a better way to cope together
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Old 08-05-12, 05:57 AM   #4
Trish
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Default Re: choking/Vomitting

I thought I'd revisit posts I put up whilst caring for Steve as they are just as relevant today for you guys. I'll try to flag up a few a week of my posts and others that helped get me through the process of looking after someone with HD.

Any questions feel free to ask.

I know the below may sound obvious/common sense but the SLTs don't always tell you and after years of dashing to find an empty bowl when Hubs was looking ominous I discovered it was easier to keep a stack of kidney bowls strategically placed to be at hand. They are also small enough to pack in a bag when going out.

The shape makes them a lot easier to use in bed given they tuck neatly under the chin.

I bought disposable ones but there are the traditional steel versions and now polypropylene.

A couple of sites are given below to demonstrate the costs but other suppliers are available.

Company A

Company B

Since using them I noted Hubs is less stressed too when having a coughing fit.
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Old 08-05-12, 02:08 PM   #5
ru
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Default Re: choking/Vomitting

Thankyou trish x
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Old 18-02-13, 10:32 PM   #6
saturn
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Default Re: choking/Vomitting

Hi I know this thread has been dormant for a while but wanted to give the following feedback, my wife suffered a massive iron deficiency due to meds she was on (she has been symptomatic for 7 years, HD medium impairment) and had been choking two or more times a day, she went onto iron and also magnesium supplement at 50% RDA and after a week stopped choking ( maybe once a fortnight) this continued for 6 months the supplements were stopped and 4 weeks later started choking again she has now been on ones from boots for two weeks and no choking has anyone else seen or noticed this ( the symptoms of magnesium deficiency look like some of the symptoms of HD) I am not so sure now that reductions in general health can be put down to disease progression too easily and sometimes there may be other issue in play, I believe it is worth people trying as it is continuing to help my wife
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Old 19-02-13, 12:15 PM   #7
Trish
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Default Re: choking/Vomitting

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Originally Posted by saturn View Post
Hi I know this thread has been dormant for a while but wanted to give the following feedback, my wife suffered a massive iron deficiency due to meds she was on (she has been symptomatic for 7 years, HD medium impairment) and had been choking two or more times a day, she went onto iron and also magnesium supplement at 50% RDA and after a week stopped choking ( maybe once a fortnight) this continued for 6 months the supplements were stopped and 4 weeks later started choking again she has now been on ones from boots for two weeks and no choking has anyone else seen or noticed this ( the symptoms of magnesium deficiency look like some of the symptoms of HD) I am not so sure now that reductions in general health can be put down to disease progression too easily and sometimes there may be other issue in play, I believe it is worth people trying as it is continuing to help my wife
I'm with you on that one Saturn.

U would say it's worthwhile discussing with the GP first before introducing anything and making sure you keep your own notes (hopefully the GP could list what to look out for) but I did a poem where I was frustrated we, as carers, were meant to by virtually psychic reading the GPs minds and the patients at times.

I wish there were more checks on a persons' system as routine way before HD symptoms are assumed to be the case. What follows can be drug mistreatment obviously if the GP is not observing 24/7.

The Check-ups

Introduction

By the time my husband needed medication and dietary intervention, to help cope with the changes taking place in him, our communication was becoming more difficult. I use the word ‘our’ as opposed to ‘his’ as communication is always a two way thing.

My husband may have found it harder to express himself due to physical; Cognitive; and emotional problems, but I also found it harder to listen due to my own tiredness and confusing the signals being given by him. Couple with that my need to adapt my ways of talking; listening; intuitively knowing things, and also change habits of a lifetime (talking fast/doing everything at 100 miles per hour – see ‘The Rushed Hush’).

If you have read my poem ‘The Cocktail’ you will have already gathered I hold a suspicion of drugs being dished out without enough thought to their side-effects. Look at any warning leaflets and labels given with medicines or supplements and you will see any number of potentially harmful physical and psychological changes which may occur as a result of taking.

It’s all very well if we can feel and express the side-effects in ourselves, but what if we couldn’t because of our disease masking them? Or worse still... What if we could feel/sense changes but have no way of getting it across to someone as we can’t communicate our physical feelings or worries? Without being able to say “STOP” the unintentional torture goes on!

When giving my husband new medicines and supplements, I took pains to chart as much as possible his reactions/changes (temperature; bowel and bladder movements; skin changes; irritability; sleep patterns etc). However, it would have been wise to have pre-empted things by asking for a full blood and allergy test before it got to the point where I was having to second guess if my husband might be reacting to/allergic to what was being introduced to his body.

Take a simple - normally harmless - thing like milk for instance... To help weight gain we were given a milk based protein drink. Overnight my husband was being filled with a high dose of milk and minerals etc. He had not expressed any intolerance before when drinking milk, but that was not at the same quantity. A drop of milk in his hot beverages and a small amount with his cereal etc. I did wonder after a while when he showed a rash if he had an intolerance to cows milk. Should I have switched to goats milk boosting the lack of calories in another way? Wouldn’t it be great if those at risk of HD were given a full health and allergy screening as part of their general well-being checks at – say – eighteen?

And then there’s the matter of blood tests. Because my husband had been so healthy before HD took hold, and not needing blood checks previously, we found there was no recorded base-line data on what his normal blood counts would be in areas such as sodium; potassium; creatinine; calcium; alkaline phosphotase; gamma glutamyl; white blood count; red blood count; albumin; globulin etc. Changes in such areas are vital to giving clues to what may be disturbing a body and what needs treating and/or balancing.

There are ‘normal’ ranges which are used to try measuring whether a person has a particularly higher or lower count than should be expected. However, it differs from person to person where they may naturally be higher or lower anyway, much like body temperature. What about the changes to blood with regards to medicines and supplements? Unless all introduced toxins and dietary changes were screened out it would never be easy to see what is ‘normal’

There are other things to consider... When the disease had progressed to the point where blood tests might be needed for this and that, my husband had developed a fear of needles and nurses in general. This made it hard to do tests and extremely distressing for him. I wish we had at least a file showing what my husband’s system was like before HD started taking over, and before I started giving him Tetrabenazine; protein drinks; cod liver oil; creatine; pure cacao etc. That could have reduced the amount of tests and saved time for someone so vulnerable and terrified at what was happening to him.

It’s a simple little tablet,
And it’s there to help your pain,
But that tablet in your tummy,
Has set off your sweats again.

And the food that I just gave you,
Whilst it won’t do this to me,
Will because it’s so abundant now,
Cause you a rash or three.

Our confusion doesn’t help us,
When you try to tell me “Stop!”
But I miss the vital signals,
As blood pressure starts to drop.

And the doctor looks at me for clues;
His records do not state,
If your vital signs are up or down,
Or just your normal rate?

So in dark we keep on working,
And the needles scare you so,
But without the map to plot our start,
We don’t know where to go!
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Old 25-01-14, 05:11 PM   #8
Raphael
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Default Re: choking/Vomitting

Hello Trish, and Saturn...

Thanks for your insightful threads on mineral deficiencies and reactions to dietary supplements. My partner John is experiencing a great deal of anxiety around eating and as we all do, as Carers, I'm trying to work out if there is any other cause for his choking at mealtimes.

His condition has declined since last summer 2013, and intervention started in November 2013 is not really working, except I'm giving him a soft diet and he has Complan, Ensure, Nutriment milk supplements, mostly all three in a day, plus the meals I make or buy for him.

I'm grateful to you both especially Trish for your poetry and prose here.

It's been a long time since I've been on the message board as John's so ill.

Best wishes from Raphael
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Old 26-01-14, 05:46 PM   #9
jaq
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Default Re: choking/Vomitting

Hi

Sorry things difficult it is such a worry the eating and choking . We had a sppech and language therapist oce but they just left us to it so muddle through as usual .

Anxiety about choking does seem to have an impact and is difficult for the person choking and hose of us looking after them.

It is such a hard disease is so many ways but glad you popped back onto the board as I feel we are all part of a wider HD family and do understand what you are going through .

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