Return to HDA home page HDA Message Board
HDA About the HDA HDA What is HD HDA Juvenile HD HDA Children & Young People HDA Professionals HDA Resources HDA Research HDA HDA News HDA Events HDA Contact the HDA HDA Home Page

Outside of office hours if you need someone to speak to you can phone the Samaritans on 116 123


Go Back   HDA Message Board > Message Board Categories > Diet, food, equipment

Diet, food, equipment Ask questions or pass on ideas about diet, food and equipment

Reply
 
Thread Tools Display Modes
Old 04-12-14, 01:42 PM   #1
Rael
New Member
 
Join Date: Dec 2014
Posts: 1
Default Swallowing Problems

Hi Everyone,

I’ve just joined the group, and thought i'd post a thread about some swallowing difficulties i've been having.

I'm 53 male who has been diagnosed with the faulty gene. I am having problems with my swallowing. I can't swallow food really at all, and have lost a lot of weight. A lot of the time I just can't swallow my own saliva, which if very scary and distressing. It seems that my swallow reflex has got something wrong with it. The doctors think its anxiety and have being given me diazapam I can drink liquids ok and have been living on complan, and black tea. Does anyone on here think this might be due to my HD diagnosis.

Warm Regards
Rael
Rael is offline   Reply With Quote
Old 09-12-14, 10:50 AM   #2
shiraz
Approved Member
 
shiraz's Avatar
 
Join Date: Oct 2014
Location: Merseyside
Posts: 887
Default Re: Swallowing Problems

Hi Rael

Your first post from the 4th has just popped up.
There are several past posts regarding swallowing issues and it is a common symptom of HD. My Hubs makes a gurgling sound all day/night which I assume is caused by his saliva and he has started to make a constant smacking/slurpy sound with his mouth. He struggles mainly swallowing liquids but frequently chokes and is worse when he is tired/agitated/anxious.

Perhaps your GP could refer you to a swallowing therapist? Welcome
shiraz is offline   Reply With Quote
Old 09-12-14, 07:14 PM   #3
dennisw
Approved Member
 
Join Date: May 2007
Location: South Cumbria
Posts: 847
Default Re: Swallowing Problems

Swallowing is a HD symptom, but could also be stress related. With HD it is usually both with liquids, which have to be thickened and solids which are puréed. As Shiraz suggest a referral to speech therapists advise on swallowing problems may help.
Dennis
dennisw is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off

Forum Jump


All times are GMT +1. The time now is 05:21 PM.


About the HDA Message Board

A UK-based forum for people whose lives are affected by Huntington's disease and wish to share their experiences with others. Moderated by SHDAs from the HDA, a UK registered charity.

Please Remember

The HDA Message Board is not a substitute for professional advice. Consult a relevant professional before making decisions that could affect you or others.

Donate to HDA


Powered by vBulletin® Version 3.8.5
Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Registered Charity No. 296453. Website Content © HDA 2010

HDA