Return to HDA home page HDA Message Board
HDA About the HDA HDA What is HD HDA Juvenile HD HDA Children & Young People HDA Professionals HDA Resources HDA Research HDA HDA News HDA Events HDA Contact the HDA HDA Home Page

Outside of office hours if you need someone to speak to you can phone the Samaritans on 116 123

Go Back   HDA Message Board > Message Board Categories > Testing, or at risk

Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD

Thread Tools Display Modes
Old 17-08-08, 07:33 AM   #1
Approved Member
Nelly's Avatar
Join Date: Mar 2007
Location: Saudi Arabia
Posts: 18
Default Psychological Testing

Good morning all,

I had an appointment yesterday with a psychologist for a baseline evaluation. I wasn't quite sure what to expect from this but it was just a series of tests relating to memory recall, following numbers sequences, answering general knowledge questions etc. I have to go back on Tuesday to get the results from the test. For those people who have taken the test already, did this form part of your counselling process? If so, how did you get on? The psychologist was asking me about my decision to get tested and as yet, I still haven't come to that decision 100% but I am going through the process anyway up and until it comes to doing the blood test. I may even go as far as doing that so that the results are there as and when I feel ready to collect them. Anyway, the lady said to me "Isn't the worst thing in the world to live with doubt when you could know one way or the other". She made a good point but I'm still not sure whether finding out is the best thing for me yet.

For those of you who have been through this and tested positive, would you say that it is now better for you to live with that knowledge or would you rather go back to living in doubt?!

Thanks for listening!

Nelly is offline   Reply With Quote
Old 17-08-08, 04:02 PM   #2
Approved Member
Join Date: Sep 2007
Location: England
Posts: 3,390
Send a message via Yahoo to just1moreperson
Default Re: Psychological Testing

Hi Paula,

I'm positive as you know. It's hit me hard and I've struggled to get on my feet since. This is going to be the worst time for me and eventually I will get out of it and get on with life. Even with this I'm happy I know my results and wouldn't want it any other way.

It's a personal choice, you will know what choice you want to make eventually hun.

Tc, Matt.
just1moreperson is offline   Reply With Quote
Old 17-08-08, 07:20 PM   #3
Approved Member
Join Date: Jul 2008
Location: Essex
Posts: 220
Default Re: Psychological Testing

Hey Nelly

As you know ive recently been tested after putting it off for 12 years, I knew before I got tested that i'd be alright with a positive result. Ive had my positive result for the last 2 weeks, the 1st few days I felt really down but as I went back to work and got back into daily life I've just gone back to the normal life I was living before. I hate the sounds of the UK process, sounds like they really draw it out and make you think about it just a bit too much, like DH said to me when I went to get the results 'its just a bit of knowledge... the sun will still rise and the birds will still be singing in the morning' and he was right ...well kinda right.. I woke up to Hurricane Edouard, it was grey and miserable and the birds werent singing, but they were the day after :)

Patrick is offline   Reply With Quote
Old 18-08-08, 08:14 PM   #4
Approved Member
Join Date: Dec 2007
Posts: 2,184
Default Re: Psychological Testing

I had some psychometric testing as well during the counseling stage. I've also signed up for a battery of tests and studies which obviously come complete with a LOT of tests - all in the name of setting benchmarks so any future changes can be measured and investigated. As I type I'm wearing a little box thing on my wrist as I'm taking part in a sleep study in a couple of weeks time.

Do I regret being tested? No.
Do I regret being HD+? Well, it's not the best thing that I've ever found out...

However, I'm glad I know because I can now do something about it. Taking part in the studies means I might help to find the drugs combo that pushes back the onset by years. I have no intention of becoming symptomatic. Not going to happen.
Fetchez la vache.
DH is offline   Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off

Forum Jump

All times are GMT +1. The time now is 10:08 AM.

About the HDA Message Board

A UK-based forum for people whose lives are affected by Huntington's disease and wish to share their experiences with others. Moderated by SHDAs from the HDA, a UK registered charity.

Please Remember

The HDA Message Board is not a substitute for professional advice. Consult a relevant professional before making decisions that could affect you or others.

Donate to HDA

Powered by vBulletin® Version 3.8.5
Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Registered Charity No. 296453. Website Content © HDA 2010