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UK legal, insurance, employment, benefits, statutory services Advice offered by HDA Moderators relates to current UK law or guidelines

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Old 31-03-18, 01:11 PM   #1
Sarahc1970
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Join Date: Mar 2018
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Default Onset of Symptoms

Hi I hope someone can help?
I was confirmed at 27 being positive and up until now, 47, have lived a healthy life plus worked full time since 16. I am however realising that my mentality ability is slowly getting worse. Can't concentrate/focus plus memory is bad too. Best way I can explain is that I feel like I have treacle brain ! Have no get up and go - prefer to stop rather than socialise. I have lost two office based jobs recently due to the mistakes was making. As I have no problems with my mobility would I quality for any kind of benefits ? And if so which? So confusing looking at everything on line. My partner works full time so again not sure if this effects anything. Thanks in advance for any advice. Xx
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Old 03-04-18, 11:13 AM   #2
Gabby
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Join Date: Jan 2015
Location: Berkshire
Posts: 367
Default Re: Onset of Symptoms

Quote:
Originally Posted by Sarahc1970 View Post
Hi I hope someone can help?
I was confirmed at 27 being positive and up until now, 47, have lived a healthy life plus worked full time since 16. I am however realising that my mentality ability is slowly getting worse. Can't concentrate/focus plus memory is bad too. Best way I can explain is that I feel like I have treacle brain ! Have no get up and go - prefer to stop rather than socialise. I have lost two office based jobs recently due to the mistakes was making. As I have no problems with my mobility would I quality for any kind of benefits ? And if so which? So confusing looking at everything on line. My partner works full time so again not sure if this effects anything. Thanks in advance for any advice. Xx
Hi Sarah , Have you seen a neurologist / doctor to confirm onset of symptoms and discuss how capable you feel to continue with work . Have you told your employer of your HD satus as under the DDA disability discrimination Act they have to make adjustments to your work for you to be able to continue as long as you can .

Gabby
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Old 03-04-18, 06:14 PM   #3
Cupcake
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Join Date: Mar 2011
Location: East Anglia
Posts: 1,490
Default Re: Onset of Symptoms

Hi Sarah

Sorry to hear you are struggling at the moment. My hubby had HD, and he got the lower benefit of DLA, as he could not manage to remember to take medication and struggled when out on his own, eventually it changed to PIP and mobility was affected because of secondary illness.

I think with a husband and income initially there wonít be much help for you. I think seeing the neurologist and getting on the radar is a good start, and although you probably did not want to tell your employer, a chat to see if they can accommodate you is a good plan, because at least then if they donít and discharge under medical grounds, you will have a better case to try and claim ESA, they too then will need to understand what you can do in the work environment and it could be you may then qualify for it long term. The benefit system seems to change all the time, and is so hard to get anything when you have worked all your life, but getting things on your medical file is a good start.

Good Luck x
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Old 07-04-18, 05:16 AM   #4
Dolphin
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Join Date: May 2008
Location: Surbiton
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Default Re: Onset of Symptoms

Hi

Have you tried contacting your local HDA specialist advisor

They have a wealth of experience plus can act as a bit of an advocate for you ?

I also think Gabby's advice is something to act on

Dolphin
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