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Old 16-05-18, 09:35 AM   #1
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Default Sudden worsening of symptoms/risk from 'minor' ailments

I haven't been on here for ages but felt I should pass this on.
My husband recently experienced a sudden worsening of symptoms - over a few days his movements became really bad and he said he felt like his brain was whizzing. He'd had a sickness and diarroeha bug but I didn't link the two things.
To cut a VERY long story short, he ended up being admitted to hospital after vomiting blood, and in A&E he was extremely agitated and couldn't sit down or keep still. He was found to have very low sodium levels, and also a chest infection. The doctors felt that these things, combined with the sickness & diarroeha bug, had impacted on his HD symptoms. They also felt his blood pressure tablets had caused his low sodium level, so he was taken off all his BP medications and has got to have regular BP checks now.

I was told that relatively 'minor' ailments like bugs and chest infections can have this type of impact on HD - I think it's because they affect the body's usual chemistry and so affect the brain too. I wasn't aware of this, and so thought it would be useful to pass this on to others.
Also, am wondering if anyone else has experienced this? I'm a bit anxious now about coming into contact with others who may have a cold or something, and then me passing it on to my husband.
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Old 16-05-18, 10:30 PM   #2
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Location: Hastings, East Sussex, UK
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Default Re: Sudden worsening of symptoms/risk from 'minor' ailments

Hi Monica

Thanks for sharing this. You and I joined this MB at the same time 6 years ago. Things have certainly moved on here, HD-wise, since then.

My son also has the domino effect of ailments, illnesses and symptoms that impact on his daily life in an increasingly bizarre way. Fortunately, the coughing and sneezing are treated\managed immediately but itís often the nasal goo that takes time to fix. He could sometimes fill a bucket with his nasal discharge. Itís been suggested that this could be partly caused by not swallowing saliva - and the only way out is via his nose. Who knows?

Itís obviously vital to halt all minor ailments in their tracks as the rogue huntingtin (HTT) gene protein seems to be able to work its way into various illnesses.

Over the past couple of years Iíve seen quite a lot of stuff about low potassium, sodium, magnesium levels, etc. and that this can affect people with HD. Levels of copper and zinc are also related to HD. Copper and zinc need to be in balance - the correct ratio is .7 copper:1 zinc.

Copper is essential for normal Central Nervous System development and function. However, excess copper also possesses toxicity and it has been established that brain copper accumulation is associated with neurodegeneration. Studies have suggested that there might be a close relationship between copper and the progress of Huntington disease.

It is also important to check the levels of vitamin B1, B3, B6, B9, B8 and Choline as they play a role in reducing copper. Stress depletes zinc levels. I do recall that before diagnosis he went through numerous tests to determine all these levels - and more.

Interesting - maybe thatís why we recently tried Lionís Mane Mushroom and Ashwagandha (natural remedy) pills.

My son sees at least 10 different people and a dog every week - and we try to ensure that illnesses are ďleft outsideĒ his home. I'm not a professional anything here - just a family member trying to make sure nothing happens accidentally on the way ...

New Day; New Outlook; New Challenges; New Possibilities; New Outcomes; New Successes
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Old 25-05-18, 05:32 PM   #3
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Default Re: Sudden worsening of symptoms/risk from 'minor' ailments

Thanks for your reply Allan. It's interesting to hear your thoughts on it.

I've bought my husband some multivitamin & mineral tablets to take, as he's not eating properly at the moment. He's lost loads of weight and keeps complaining of feeling full when he's had very small meals.

He's been found to be anaemic too but we go for another blood test next week as the last was just after he came out of hospital so the gp wants to see if it's still the same now. If it is, the gp is talking about sending him for a gastroscopy but since this would require him to have a general anaesthetic, I'm a bit worried that he's not really well enough for that at the moment.

Fingers crossed that things sort themselves out without the need for the gastroscopy.
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Old 25-05-18, 09:02 PM   #4
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Default Re: Sudden worsening of symptoms/risk from 'minor' ailments

Hi Monica

Sorry to hear your hubby is not doing so well at the moment. I do definitely think they are more at risk of ailments, because the brain has to work so much harder to fight everything.

Please make sure that they do full blood checks on your hubby to rule out any unseen underlying cause, I know only too well the outcome of negligence and blaming symptoms just on being HD related.

Take care of yourself too xx
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Old 26-05-18, 07:18 AM   #5
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Default Re: Sudden worsening of symptoms/risk from 'minor' ailments

Hi Monica....About 6 years ago now my husband started to feel very full after eating say a quarter of a sandwich and then he started to vomit after he'd eaten anything and then after he'd had anything to drink. He just didn't feel well, took to bed and had a high fever and was very hyper....I ended up calling an ambulance one night because he was in a dreadful state. He was put on a drip for severe dehydration and in hospital for a week. Turned out he had bleeding ulcers & an hiatus hernia...they did the endoscopy without any general anaesthetic (just a local spray at the back of his throat), and a sedative to calm him and he now takes medication daily to prevent them coming back. He's also on a daily multi-vit + iron.....sounds a bit like what's happening to your husband?
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Old 27-05-18, 10:15 PM   #6
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Default Re: Sudden worsening of symptoms/risk from 'minor' ailments

Thanks Cupcake and Shiraz for your replies.
Shiraz, that's useful to know - I will mention that to the doctor when we next go.
He's had a decent meal today as we went out for Sunday lunch - will see how he goes on tomorrow.
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