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Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD

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Old 08-02-18, 10:45 PM   #1
Hoping81
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Join Date: Jun 2017
Location: Gateshead
Posts: 17
Default Blood draw day today

Well today was the day i got tested.
It all seems a bit surreal that those two blood tubes have the answer to my questions. Now the real wait begins i suppose... results day 15th march. Doesnt seem enough say fingers crossed really but hey ho.
I had a different counsellor today (someone who id apparently met when i was 17-im now 36 so safe to say i didnt recognise her..oops).
Sad to think all this time i had been secretly pinning my hopes on the fact my dad must have had a high CAG repeat because his symptoms started in his early 20's (dies at 38) however lady reminded me that he may have had mid range but just started early and how she has seen a family with same CAG repeat starting symptoms at least 20 years apart (the joy of the unpredictability of this $hitt¥ disease.) So that took the wind out of me a little.
Ahh well...still a little bit raw, heads in the shed as they say.
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Old 08-02-18, 11:27 PM   #2
charliegirl
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Join Date: Jun 2013
Location: Lancashire
Posts: 113
Default Re: Blood draw day today

Quote:
Originally Posted by Hoping81 View Post
Well today was the day i got tested.
It all seems a bit surreal that those two blood tubes have the answer to my questions. Now the real wait begins i suppose... results day 15th march. Doesnt seem enough say fingers crossed really but hey ho.
I had a different counsellor today (someone who id apparently met when i was 17-im now 36 so safe to say i didnt recognise her..oops).
Sad to think all this time i had been secretly pinning my hopes on the fact my dad must have had a high CAG repeat because his symptoms started in his early 20's (dies at 38) however lady reminded me that he may have had mid range but just started early and how she has seen a family with same CAG repeat starting symptoms at least 20 years apart (the joy of the unpredictability of this $hitt¥ disease.) So that took the wind out of me a little.
Ahh well...still a little bit raw, heads in the shed as they say.
l

Hi . I am sorry about your father . I hope your results are good news . I have know I have the gene for nearly 4 years. It is very difficult. I have depression and anxiety related to the gene changes. It’s important to have friends/family that youcan trust - that’s my way of coping. And being open about H.D. Take care, Lv Charlie girl 🐶 xx

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