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Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD

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Old 01-02-18, 09:57 AM   #11
banda
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Join Date: Apr 2014
Location: Consett, County Durham
Posts: 476
Default Re: Going through testing

There's quite a NE contingent on here!! I take my hubby to Centre for life too. Have been once to the group that meets at Walkergate...it is lovely...I just can't always get. Good luck everyone and stay strong. xx
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Old 01-02-18, 10:55 PM   #12
Hoping81
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Join Date: Jun 2017
Location: Gateshead
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Default Re: Going through testing

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Originally Posted by StrawberryFields View Post
Hi there. Yes - at Centre for Life. I went expecting to have blood taken but it was an oral DNA swab. Had mentally prepared for a needle then had oral swab- like the police taking a DNA sample! Had to laugh as I ended up being worried that I’d just eaten a bar of chocolate and that my lipstick would be in the sample! Am hoping to pluck up the courage to one day get involved with HDA/ support group as I do think that talking to people in the same boat is helpful. Best of luck to you and a virtual hug right back at you. Feel in safe hands with Centre for Life and that they’ll support with getting involved in research -which my Dad and others like him never got the chance to do bless him/ them. Take care X
Thanks for the heads up. Im sure she told me it was a blood draw. Im in next thursday, my mam has insisted she go with me to this one (other appointments ive wanted to do myself) and ive taken the next day off work (just to sort my head out a little -if thats possible). Are the results 3 weeks to the day or do you have to wait for them to create another appointment?
Its really hard to prepare for... my best friend keeps telling me im brave. I dont feel it. Just $h!t scared.
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Old 02-02-18, 09:51 AM   #13
banda
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Join Date: Apr 2014
Location: Consett, County Durham
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Default Re: Going through testing

My hubby had a blood test taken at Sunderland Royal and I think we then waited about 6 weeks for the appointment at Centre for Life where we got the result.
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Old 02-02-18, 04:54 PM   #14
jaq
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Join Date: Oct 2006
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Default Re: Going through testing

It was four weeks between bloods and result . I was the first appointment in the clinic and the relays are given straight away . Xxx
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Old 09-02-18, 05:27 PM   #15
Hoping81
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Join Date: Jun 2017
Location: Gateshead
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Default Re: Going through testing

Quote:
Originally Posted by StrawberryFields View Post
Hi there. Yes - at Centre for Life. I went expecting to have blood taken but it was an oral DNA swab. Had mentally prepared for a needle then had oral swab- like the police taking a DNA sample! Had to laugh as I ended up being worried that I’d just eaten a bar of chocolate and that my lipstick would be in the sample! Am hoping to pluck up the courage to one day get involved with HDA/ support group as I do think that talking to people in the same boat is helpful. Best of luck to you and a virtual hug right back at you. Feel in safe hands with Centre for Life and that they’ll support with getting involved in research -which my Dad and others like him never got the chance to do bless him/ them. Take care X
Ended up having to have blood draw as had been chewing gum.. gutted never even thought. So note to all getting test eno chewing gum prior to test.

Hope your ok strawberryfields. Xxx
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Old 20-04-18, 09:59 AM   #16
Ange<3
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Join Date: Jul 2017
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Default Re: Going through testing

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I get my result in just over a week. I’m prepared for the worst (have been twitching and getting frustrated for over a year now). I have more to lose than to gain In confirming what deep down I know is my destiny but I feel that I need to know in order to plan for my future and to prepare my children. I know a positive result will crucify me because my children will become what I’ve been all these years, ‘At Risk’ and my heart will break. Trying to stay positive as I know that being a misery and a drama queen will help nobody. Need to stay strong for my family but need to vent somewhere. Thanks for listening to anyone reading this.
Hi really hope you got a negative result. I am also from Newcastle and I know how hard it hits you if it does come back positive. If you need anyone to talk to or if you want to meet up let me know. I've managed to turn around that awful corner now and am more or less back to the person I was before the test but I know how hard it is getting that news. Fingers crossed for you xx
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