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Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD

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Old 09-06-18, 12:44 PM   #1
Nat68
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Default What are the chances?

Hello. My uncle was tested HD when he was 60. He passsed away at 75 fully ill from HD. My mum (his sister) is 71 age. What are the chances of her developing HD. She has no HD symptons. Should she get tested? All HD in the family started at age 60. Please advise urgently cos she is concerned at the moment. Thanks xx
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Old 12-06-18, 12:51 AM   #2
Allan
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Default Re: What are the chances?

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Hi Nat

Your mum's GP needs to refer her to an HD Neurologist and HD Counsellors. They will give your mum all the necessary information and advice she needs.

Also, contact the HDA (0151 331 5444) to speak to the Specialist HD Advisor for your region.

If I were you I would never ask these personal family questions on open forums or social media as you're likely to get a variety of responses that could possibly make matters\decision making worse. The answer is probably somewhere halfway between the professional medical advice and whatever you might gain directly from HD families.

Best wishes ...

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Old 15-06-18, 09:21 AM   #3
Amanda Stansfield
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Default Re: What are the chances?

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Originally Posted by Nat68 View Post
Hello. My uncle was tested HD when he was 60. He passsed away at 75 fully ill from HD. My mum (his sister) is 71 age. What are the chances of her developing HD. She has no HD symptons. Should she get tested? All HD in the family started at age 60. Please advise urgently cos she is concerned at the moment. Thanks xx
Hi

Yes make an appointment with GP and go with Mum. There's no right or wrong answer here, its a personal decision whether to be tested or not no matter what age.
I hope all is well for Mum and yourself.
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