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Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD

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Old 03-07-17, 10:59 AM   #1
Hoping81
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Join Date: Jun 2017
Location: Gateshead
Posts: 8
Default Early symptoms

Hi im at risk and getting tested in a few weeks. I realise at the moment im getting paranoid about symptoms however does anyone know if lower back problems are attributed to huntingtons onset.
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Old 06-07-17, 10:33 PM   #2
Gabby
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Join Date: Jan 2015
Location: Berkshire
Posts: 331
Default Re: Early symptoms

Quote:
Originally Posted by Hoping81 View Post
Hi im at risk and getting tested in a few weeks. I realise at the moment im getting paranoid about symptoms however does anyone know if lower back problems are attributed to huntingtons onset.
Not specifically a symptom as far as I am aware. You will be looking for symptoms but try to get out and about and have fun until test results are back. Seek.help support groups Specialist Huntingtons disease advisor info from Hda or Gp if you get too down about it
Good luck
Take care
Gabby
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Old 17-07-17, 08:41 AM   #3
Amanda Stansfield
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Join Date: Nov 2006
Location: lancashire
Posts: 229
Default Re: Early symptoms

Quote:
Originally Posted by Gabby View Post
Not specifically a symptom as far as I am aware. You will be looking for symptoms but try to get out and about and have fun until test results are back. Seek.help support groups Specialist Huntingtons disease advisor info from Hda or Gp if you get too down about it
Good luck
Take care
Gabby
Gabbys right hun you are looking for symptoms and sending yourself potty in the process x I know how you feel though I did exactly the same! Dropping things tripping up, arm twitch you name it..... get out with your mates and put your mind on something more positive xxxxxxxx
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Old 27-07-17, 10:01 AM   #4
Tom B
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Join Date: Oct 2015
Location: Norfolk
Posts: 18
Default Re: Early symptoms

Quote:
Originally Posted by Hoping81 View Post
Hi im at risk and getting tested in a few weeks. I realise at the moment im getting paranoid about symptoms however does anyone know if lower back problems are attributed to huntingtons onset.
I've no idea but what I do know is that my wife's father, grandmother, uncle and aunt all had HD and during the eleven months of her counselling she had many early symptoms that could be attributed to HD. She tested negative! She was looking for symptoms and understandably so. This is a tough time for you, stay strong and know that we're all rooting for you and have our fingers crossed for a negative result!
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