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Research, drugs, treatment, new diagnosis Forum for medical issues, and for the recently diagnosed (and families)

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Old 15-07-17, 02:58 PM   #1
biskit
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Default deep brain stimulation

Ive been reading up about this process,hasvanybody tried it,did it help,where did you get funding,thanks in advance.
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Old 18-07-17, 06:27 PM   #2
Gabby
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Default Re: deep brain stimulation

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Originally Posted by biskit View Post
Ive been reading up about this process,hasvanybody tried it,did it help,where did you get funding,thanks in advance.

Hi My hubbie has been involved in a research project called HD Brain train I dont know of any treatment available in the UK ? where abouts do you live ?

Gabby
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Old 18-07-17, 11:12 PM   #3
Allan
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Default Re: deep brain stimulation

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Originally Posted by biskit View Post
Ive been reading up about this process,hasvanybody tried it,did it help,where did you get funding,thanks in advance.
Hi there

As you've been reading up about DBS you've probably come across the following stuff. If not, it's worth a read as you will get views from different perspectives.

This is how the NHS describe DBS:

Deep Brain Stimulation (DBS) is a procedure in which stimulating electrodes are placed stereo-tactically into the deep structures of the brain. The electrodes are connected to an implanted pulse generator which is battery powered. Typically the eeleelectrodes are secured to the skull and a cable tunnelled to the pulse generator situated in the front of the chest, although other positions are used. electrodes are secured to the skull and a cable tunnelled to the pulse generator situated in the front of the chest, although other positions are used. electrodes are secured to the skull and a cable tunnelled to the pulse generator situated in the front of the chest, although other positions are used.
electrodes are secured to the skull and a cable tunnelled to the pulse generator situated in the front of the chest, although other positions are used. Battery replacements are required at intervals (measured in years). Rechargeable systems have been developed with a usual lifespan of ten years.


www.england.nhs.uk/wp-content/uploads/2013/04/d03-p-b.pdf Sounds like whoever wrote this NHS stuff was having DBS at the time of writing! See p.5 Definitions

You definitely need to read the following:

www.stgeorges.nhs.uk/service/neuro/neurology/movement-disorders/deep-brain-stimulation-for-movement-disorders

https://healthunlocked.com/nhsengland/posts/132302370/deep-brain-stimulation

New method could lead to deep brain stimulation without surgery

Noninvasive Deep Brain Stimulation via Temporally Interfering Electric Fields

I suppose the big question is - are you in the UK or elsewhere?

.
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Old 19-07-17, 07:07 PM   #4
biskit
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Default Re: deep brain stimulation

Im in the uk,im a PA for a guy with HD,looks like funding would be a major issue even if they thought it would help
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Old 19-07-17, 07:08 PM   #5
biskit
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Default Re: deep brain stimulation

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Hi My hubbie has been involved in a research project called HD Brain train I dont know of any treatment available in the UK ? where abouts do you live ?

Gabby
Nottingham here
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Old 27-07-17, 12:43 PM   #6
Gabby
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Default Re: deep brain stimulation

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Nottingham here
ok there were doing it in London at UCL may be worth looking into it ?

Gabby
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