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Old 26-09-17, 09:45 AM   #1
Red Robin
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Join Date: Dec 2015
Posts: 30
Default Mixed Emotions

Hubby was finally given the label by a specialist - he has HD - his reply "I've probably had it for sometime" - finally he has admitted, but 2 weeks latter when asked by a visiting nurse - "he is not going to be diagnosed, and he wouldn't believe the medical profession, he will only believe it if God tells him" - so we are back were we started.
I read posts, then I think I am getting obsessed myself about this disease, and stay away - but I have read where you love and care and remember the person pre HD - I have seemed to have forgotten. This at times horrible person has creped into our lives over the years and replaced the person I knew, and I find the negatives have overpowered the positives. I feel sorry for him, he has no friends, and few family members will visit. He wont help himself he is in complete denial there is any problem at all. I have had to deal with tradespeople not wanting to come to our place, he just thinks they are difficult. But today I witnessed him actually being told the nurses actually don't want to come to him - I saw the tears well up in his eyes, my heart broke. But he does not see how difficult and demanding he can be - so sad.
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Old 26-09-17, 02:03 PM   #2
jacqueline
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Join Date: Feb 2008
Posts: 43
Default Re: Mixed Emotions

Quote:
Originally Posted by Red Robin View Post
Hubby was finally given the label by a specialist - he has HD - his reply "I've probably had it for sometime" - finally he has admitted, but 2 weeks latter when asked by a visiting nurse - "he is not going to be diagnosed, and he wouldn't believe the medical profession, he will only believe it if God tells him" - so we are back were we started.
I read posts, then I think I am getting obsessed myself about this disease, and stay away - but I have read where you love and care and remember the person pre HD - I have seemed to have forgotten. This at times horrible person has creped into our lives over the years and replaced the person I knew, and I find the negatives have overpowered the positives. I feel sorry for him, he has no friends, and few family members will visit. He wont help himself he is in complete denial there is any problem at all. I have had to deal with tradespeople not wanting to come to our place, he just thinks they are difficult. But today I witnessed him actually being told the nurses actually don't want to come to him - I saw the tears well up in his eyes, my heart broke. But he does not see how difficult and demanding he can be - so sad.
HD is totally heartbreaking red robin as there is no way out.
The "I am fine" seems to be the by word of most HD positives.
I am so sorry for your need to be on here but at least you can come on here for relief and know you are not alone in this horrendous disease.
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Old 26-09-17, 02:37 PM   #3
Amanda Stansfield
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Join Date: Nov 2006
Location: lancashire
Posts: 229
Default Re: Mixed Emotions

Quote:
Originally Posted by Red Robin View Post
Hubby was finally given the label by a specialist - he has HD - his reply "I've probably had it for sometime" - finally he has admitted, but 2 weeks latter when asked by a visiting nurse - "he is not going to be diagnosed, and he wouldn't believe the medical profession, he will only believe it if God tells him" - so we are back were we started.
I read posts, then I think I am getting obsessed myself about this disease, and stay away - but I have read where you love and care and remember the person pre HD - I have seemed to have forgotten. This at times horrible person has creped into our lives over the years and replaced the person I knew, and I find the negatives have overpowered the positives. I feel sorry for him, he has no friends, and few family members will visit. He wont help himself he is in complete denial there is any problem at all. I have had to deal with tradespeople not wanting to come to our place, he just thinks they are difficult. But today I witnessed him actually being told the nurses actually don't want to come to him - I saw the tears well up in his eyes, my heart broke. But he does not see how difficult and demanding he can be - so sad.
Oh Red Robin I know exactly how you feel, my heart breaks daily having to watch Chris (twin) I miss the bloke that used to wanna annoying the hell outta me....I'd have that Chris back any day xx Always here for a chin wag and a moan if you need me

Amanda
(Life isn't about waiting for the storm to pass its about learning how to dance in the rain)
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