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Research, drugs, treatment, new diagnosis Forum for medical issues, and for the recently diagnosed (and families)

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Old 25-06-17, 05:16 PM   #1
Gabby
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Join Date: Jan 2015
Location: Berkshire
Posts: 331
Default HD Brain Training research

Hi All ,
After my hubbie and I took part in the CSF -HD study giving spinal fluid and having MR|I's My hubbie was approached by another researcher as recommended by the Lovely Lauren . We met Marina one of the assistants in london and my hubbie had cognitive tests and MRI 's he then had to do a further 5 visits a few weeks apart to do the Brain training .
We were unaware if he was receiving the "proper" training or a "placebo " training
after the 5 training sessions my hubbie had 3 follow up sessions for MRi's and cognitive tests . The brain training was done while in the MRI scanner .
He had to think of physical things he liked doing and imagine doing them and do tap type tests .
He had his final appointment in JUne and we were then informed he had been receiving the proper training .

He felt also it had made some improvement to his thinking .
Obviously she couldnt comment on the overall outcome of the training but did say there may be some refresher type training offered at a later date .
I am really interested in what the overall outcomes are for this .

The idea is the brain can compensate for the areas damaged by HD to use parts that are not damaged and it would work well alongside the gene silencing where the progression of HD may be stopped . the brain is very good at repairing itself and may be able to repair some of the damage but some damage can not be repaired so training your brain to use other parts may help

Gabby .
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