Return to HDA home page HDA Message Board
HDA About the HDA HDA What is HD HDA Juvenile HD HDA Children & Young People HDA Professionals HDA Resources HDA Research HDA HDA News HDA Events HDA Contact the HDA HDA Home Page

Outside of office hours if you need someone to speak to you can phone the Samaritans on 116 123


Go Back   HDA Message Board > Message Board Categories > Genealogy, children, PGD

Genealogy, children, PGD Discuss family and preimplantation genetic diagnosis issues

Reply
 
Thread Tools Display Modes
Old 21-01-10, 09:57 AM   #1
angecornwall
Approved Member
 
Join Date: Sep 2009
Location: Cornwall
Posts: 276
Default family tree where next please...!!

Hi, like some of you on here I'm now starting to get interested in where the HD stems from in my family. My Dad has HD, he's 70 and we didn't know it was in the family until he was diagnosed last February.

I signed up for thegenealogist.co.uk last night and did a couple of searches and have come across the register pages of both his mum and dad's deaths. I think we'd assumed this had come come from his dad as he died when he was 46 and we assumed probably wrongly that he probably died before he was symptomatic and it was never discovered.... however, I have since found out that my dad's mum had a few psychiatric problems and was in care when she died at age 75, was incontinent, etc and everyone thought it was just old age, but there are similarities with the way my dad has gone... and now I'm starting to wonder if it may have come from his mum...

Anyway I wondered what I did next regards the family tree if anyone knows? I suppose I need to see if I can find out the cause of death? Morbid but I'm now starting to become very interested in this...

Thanks for any help...
angecornwall is offline   Reply With Quote
Old 21-01-10, 02:19 PM   #2
Suki
Approved Member
 
Join Date: Nov 2006
Posts: 173
Default Re: family tree where next please...!!

Hi Ange,

I share your morbid facination, so don't worry!
I started researching my tree properly about a year ago. I am a member of Genes Reunited and Ancestry.co.uk. I have actually found out some pretty interesting stuff on both sides, like family members born in a workhouse.
I got the Ancestry software for Christmas and shall be using that more soon, once I get back into the swing after the post festive rush!
Your next stop to gettting some information which is more detailed would likely be getting a copy of the death certificate. I personally order them by going through the .gov site, as they are much more expensive on ancestry.
I hope this helps in some way.
Suki is offline   Reply With Quote
Old 21-01-10, 08:36 PM   #3
telibeli
Approved Member
 
Join Date: Jun 2009
Location: Lincs
Posts: 483
Default Re: family tree where next please...!!

This is great. My cousin and I want to get one together. The problem is she lives in Canada, the common relatives between us are from Italy, my dad is Irish. Cousin can get lots of Canadian relatives from the 50's up to present day. I can get lots on our Irish side. But when it comes to earlier relatives it seems impossible. There doesn't seem to be any registry in Italy prior to the 40's. Well, nothing I can access on the net.

Maybe I need to go Italy for a few months to get the information. Do you think the BBC would like to follow it so they then can pick up the bill? All that time when I lived there and I never considered researching our ancestry. What a wasted opportunity.

Hope it goes well. Keep us posted. Some one said on FB they found some family they never knew existed the other day. You could be related to a millionaire or 60 billionth in line to the throne. Or you could simply be of peasant stock like myself. Very exciting.
__________________
Don't wait for the storm clouds to pass, learn to dance in the rain.
telibeli is offline   Reply With Quote
Old 22-01-10, 09:32 PM   #4
Felinefriend
Approved Member
 
Join Date: Nov 2009
Location: England
Posts: 70
Default Re: family tree where next please...!!

Hi Ang,

When I was trying to find out which of my grandads siblings had HD I used Ancestry. I thought it was ok you just need to think about it in order birth, marriage, death ....

I eventually found 3 out of 5 deaths so not too bad but I stopped there cause 2 of the 3 had HD on them so I didnt really need to carry on.

Good luck!!

FF
x
Felinefriend is offline   Reply With Quote
Old 23-01-10, 10:42 AM   #5
angecornwall
Approved Member
 
Join Date: Sep 2009
Location: Cornwall
Posts: 276
Default Re: family tree where next please...!!

Thanks for your replies, I can't believe I'm so excited about ordering death certificates !!!

Have ordered these from the .gov website as suggested... have been using thegenealogist.co.uk website but will have a geek at the Ancestry website and see what they have to offer LOL
angecornwall is offline   Reply With Quote
Old 23-01-10, 06:10 PM   #6
kayleigh
Approved Member
 
Join Date: Sep 2008
Location: leyland lancashire
Posts: 1,202
Default Re: family tree where next please...!!

hhihya!! tthhis soundds goodd:)x
kayleigh is offline   Reply With Quote
Old 17-02-10, 08:50 PM   #7
Suki
Approved Member
 
Join Date: Nov 2006
Posts: 173
Default Re: family tree where next please...!!

I'm still researching my tree, so I thought I'd see if there was anyone on here with ancestors from Staffordshire, particularly the Stoke on Trent area?
Suki is offline   Reply With Quote
Old 17-03-10, 09:38 PM   #8
kayleigh
Approved Member
 
Join Date: Sep 2008
Location: leyland lancashire
Posts: 1,202
Default Re: family tree where next please...!!

i amm alsoo inntterested in mmyy familyy treee:))
kayleigh is offline   Reply With Quote
Old 17-03-10, 10:08 PM   #9
Blondie
Approved Member
 
Join Date: Feb 2010
Location: Beside the seaside,beside the sea : )
Posts: 877
Default Re: family tree where next please...!!

It wouldn't surprise me if some of you are related somewhere down the line.My daughters gran was one of about 12 kids!!!!!Them spread out all over the country so who knows?!
Blondie is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off

Forum Jump


All times are GMT +1. The time now is 09:02 AM.


About the HDA Message Board

A UK-based forum for people whose lives are affected by Huntington's disease and wish to share their experiences with others. Moderated by SHDAs from the HDA, a UK registered charity.

Please Remember

The HDA Message Board is not a substitute for professional advice. Consult a relevant professional before making decisions that could affect you or others.

Donate to HDA


Powered by vBulletin® Version 3.8.5
Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Registered Charity No. 296453. Website Content © HDA 2010

HDA