Return to HDA home page HDA Message Board
HDA About the HDA HDA What is HD HDA Juvenile HD HDA Children & Young People HDA Professionals HDA Resources HDA Research HDA HDA News HDA Events HDA Contact the HDA HDA Home Page

Outside of office hours if you need someone to speak to you can phone the Samaritans on 116 123


Go Back   HDA Message Board > Message Board Categories > Fundraising, events, summer camps, support groups

Notices

Fundraising, events, summer camps, support groups Tell us about your UK fundraising activities and local meetings

Reply
 
Thread Tools Display Modes
Old 15-04-12, 09:00 PM   #121
Trish
Approved Member
 
Trish's Avatar
 
Join Date: May 2010
Location: England
Posts: 2,391
Default Re: Curse in Verse - the poetry of HD

Apart from the cheeky bumps below (pun intended on the 'Moi' video) I've just added another YouTube slideshow. This one isn't about HD as such but I hope people find it nice anyway.

http://www.facebook.com/l.php?u=http...m7XWu2V4xg84TA


Quote:
Originally Posted by Trish View Post
Another cheeky bump for the book and also, talking of cheeks, I've been at the YouTube Slideshows again.

This time I have been super indulgent and put up snaps of me but if I dropped down dead tomorrow I think it would rather balance things out somewhat where I have posted up Steve's snaps and it's a bit of an eye opener.

UK Paperback link

http://www.amazon.co.uk/Curse-Verse-.../dp/1908105097

UK Kindle Link

http://www.amazon.co.uk/Curse-Verse-...A3TVV12T0I6NSM

USA link

http://www.amazon.com/Curse-Verse-Mu...mm_pap_title_0

NEW VIDEO:

Moi

http://www.youtube.com/watch?v=bEBsGndzRNg

Us
Team Dainton (We found love in a 'Hopeless Place')

http://www.youtube.com/watch?v=NNi3HVPx7iM

Steve
in Your Eyes (Tribute to Steve's baby blues )

http://www.youtube.com/watch?v=LeCqdRNAZJI
__________________
I tried.
Trish is offline   Reply With Quote
Old 21-04-12, 12:53 PM   #122
Trish
Approved Member
 
Trish's Avatar
 
Join Date: May 2010
Location: England
Posts: 2,391
Default Re: Curse in Verse - the poetry of HD

Another bump for the book

I started a part time office job this week and have given away a couple of copies to close colleagues. I may be sacked soon if they read it and think 'what on earth have we taken on here?

What I am hoping though, is that it encorages them to let me put up some posters in the Warehouse and maybe even have a book sale day during HD Awareness Week. We shall see. All depends on how cheeky I can be

The book can be purchased in paperback or Kindle format.

RRP is £6.95 +P&P from Amazon (see below). However, there are a number of booksellers selling on-line and the price varies from the RRP widely. The HDA are also selling at £5 + £1 P&P. I need to sort out getting the HDA cover picture changed from my original version.

Link below to HDA Book Shop Page. There are lots of very useful books in there so even if you don't buy my book I hope, at least, that you see something in there which looks helpful to your situation.

I'm currently reading Sandy Sulaiman's book (One Family's Story). It's a wonderful book and each chapter is written by a family member telling it from their own personal angle. Amazingly honest and open and the writing is superb on each contributor's part.

HDA Links:

HDA Book Shop

Amazon Links:

UK Amazon link

UK Kindle

USA Kindle
__________________
I tried.
Trish is offline   Reply With Quote
Old 28-04-12, 12:53 PM   #123
Trish
Approved Member
 
Trish's Avatar
 
Join Date: May 2010
Location: England
Posts: 2,391
Default Re: Curse in Verse - the poetry of HD

Another cheeky bump for the book.

UK Amazon Site

Amazon US

Kindle

My blog on the book site

Steve's JG page just had a mention on the Crystal Palace FC Radio and they mentioned maybe getting the HDA as a charity for coverage next Season. I shall have to see if they are being serious

Steve's Page
__________________
I tried.
Trish is offline   Reply With Quote
Old 28-04-12, 06:19 PM   #124
kayleigh
Approved Member
 
Join Date: Sep 2008
Location: leyland lancashire
Posts: 1,202
Default Re: Curse in Verse - the poetry of HD

Hi Trish I think that this is good xxx
kayleigh is offline   Reply With Quote
Old 28-04-12, 07:34 PM   #125
Trish
Approved Member
 
Trish's Avatar
 
Join Date: May 2010
Location: England
Posts: 2,391
Default Re: Curse in Verse - the poetry of HD

Quote:
Originally Posted by kayleigh View Post
Hi Trish I think that this is good xxx
Awwwwwwwwwww Thank you sweetie

Hope you guys are doing okay xxxxxxxx
__________________
I tried.
Trish is offline   Reply With Quote
Old 29-04-12, 08:04 AM   #126
Katinka
Approved Member
 
Join Date: Apr 2012
Posts: 56
Default Re: Curse in Verse - the poetry of HD

Trish, I love your poetry! Thank you for sharing.xx Katinka
Katinka is offline   Reply With Quote
Old 29-04-12, 12:15 PM   #127
Trish
Approved Member
 
Trish's Avatar
 
Join Date: May 2010
Location: England
Posts: 2,391
Default Re: Curse in Verse - the poetry of HD

Quote:
Originally Posted by Katinka View Post
Trish, I love your poetry! Thank you for sharing.xx Katinka
Thanks Katina

Feel free to add me on FB and I can add you to the group called 'Curse in Verse...' In there people share blogs and musics and creative offerings. I'm sure people would love to see your textile projects
__________________
I tried.
Trish is offline   Reply With Quote
Old 01-05-12, 07:08 AM   #128
Katinka
Approved Member
 
Join Date: Apr 2012
Posts: 56
Default Re: Curse in Verse - the poetry of HD

Quote:
Originally Posted by Trish View Post
Thanks Katina

Feel free to add me on FB and I can add you to the group called 'Curse in Verse...' In there people share blogs and musics and creative offerings. I'm sure people would love to see your textile projects
Yes, I'll do that! Thanks! the textile is in a folder called "Magical healing coat"!
Katinka is offline   Reply With Quote
Old 06-05-12, 02:43 PM   #129
Trish
Approved Member
 
Trish's Avatar
 
Join Date: May 2010
Location: England
Posts: 2,391
Default Re: Curse in Verse - the poetry of HD

Quote:
Originally Posted by Katinka View Post
Yes, I'll do that! Thanks! the textile is in a folder called "Magical healing coat"!
Thanks for hooking up in FaceBook.

Amazing project you have there.
__________________
I tried.
Trish is offline   Reply With Quote
Old 06-05-12, 02:58 PM   #130
Trish
Approved Member
 
Trish's Avatar
 
Join Date: May 2010
Location: England
Posts: 2,391
Default Re: Curse in Verse - the poetry of HD

Time for another book plug

UK Amazon paperback

Amazon Kindle

USA Amazon


Alternatively, the HDA are selling copies for £5 + £1 P&P

Click here for HDA Form

A whole host of other goodies are also available from the HDA Shop

HDA Shop - General Merchandise
__________________
I tried.
Trish is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off

Forum Jump


All times are GMT +1. The time now is 05:11 PM.


About the HDA Message Board

A UK-based forum for people whose lives are affected by Huntington's disease and wish to share their experiences with others. Moderated by SHDAs from the HDA, a UK registered charity.

Please Remember

The HDA Message Board is not a substitute for professional advice. Consult a relevant professional before making decisions that could affect you or others.

Donate to HDA


Powered by vBulletin® Version 3.8.5
Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Registered Charity No. 296453. Website Content © HDA 2010

HDA