Return to HDA home page HDA Message Board
HDA About the HDA HDA What is HD HDA Juvenile HD HDA Children & Young People HDA Professionals HDA Resources HDA Research HDA HDA News HDA Events HDA Contact the HDA HDA Home Page

Outside of office hours if you need someone to speak to you can phone the Samaritans on 116 123


Go Back   HDA Message Board > Message Board Categories > Young People

Young People For young people under the age of 35 to share experiences, information and ideas

Reply
 
Thread Tools Display Modes
Old 20-04-09, 12:55 PM   #1
lau_xx
Approved Member
 
Join Date: Apr 2009
Location: Essex
Posts: 6
Default Carer....new to this!

Hi, I am 18 and new to this. I am not a HD sufferer, but I work in a care home devoted to HD sufferers. Before I began my work there, I was slightly apprehensive as I didn't know what to expect or anything, but as soon as I started, my mindset completely changed. I originally applied for the job for practical experience for my adult nursing course, but now I am thinking of maybe becoming a HD specialist as I have been so inspired by the residents. I am also thinking of taking part in some charity events to raise money for this important charity. Would love to hear from some more people around my age, whatever the situation, and if anyone would like someone to talk to, I will be more than happy to offer that. Lauxxx
lau_xx is offline   Reply With Quote
Old 20-04-09, 02:48 PM   #2
just1moreperson
Approved Member
 
Join Date: Sep 2007
Location: England
Posts: 3,390
Send a message via Yahoo to just1moreperson
Default Re: Carer....new to this!

Hi Lau,

Great that you enjoy helping HD folk My Dad is in the late stages of HD aged 54, me and my Mum look after him. I tested positive myself last summer aged 20 now. It's nice to see people like you being taken in by HD and the people it affects. Welcome to the board

Tc, Matt.
just1moreperson is offline   Reply With Quote
Old 20-04-09, 07:27 PM   #3
dennisw
Approved Member
 
Join Date: May 2007
Location: South Cumbria
Posts: 847
Default Re: Carer....new to this!

Hi Lau,

Welcome to the board.
It is very pleasing to read you care for HD suffers and the satifaction it gives you.
The work can be very demanding and I am sure, even if they cannot show it, the residents really appreciate your efforts.
Dennis
dennisw is offline   Reply With Quote
Old 20-04-09, 09:19 PM   #4
Caz
Approved Member
 
Join Date: Oct 2008
Location: essex
Posts: 437
Default Re: Carer....new to this!

Hi lau

Welcome to the message board. I am 52 and in the early stages of HD and will probably end up in your care home at some point

Its really nice that you are going to perhaps specialise in HD and do fund raising. Good for you.

All the best
Caz
xxx
Caz is offline   Reply With Quote
Old 20-04-09, 09:38 PM   #5
kayleigh
Approved Member
 
Join Date: Sep 2008
Location: leyland lancashire
Posts: 1,202
Default Re: Carer....new to this!

hiya welcome to the board! i think its really great what you do
i have jhd and a little girl whos 2
anyway welcome aboard!
kayleigh is offline   Reply With Quote
Old 21-04-09, 09:22 AM   #6
lau_xx
Approved Member
 
Join Date: Apr 2009
Location: Essex
Posts: 6
Default Re: Carer....new to this!

thank you!i've just finished a 12 hour night shift at the care home which was tiring, but i had a lovely morning watching the sun rise with one of the residents :) it is lovely to realise the amount the residents appreciate the work you do, the care you give them, even if they are in late stages and find it difficult to communicate.

Kayleigh - I'm really sorry to hear you have jhd, how are things? how old are you if you don't mind me asking? I saw your boyfriend's parachute jump fundraising page - i get paid on friday, so i'll sponsor him! :) i'm thinking my fundraising will be cycling or walking, as I have epilepsy so i can't do parachute jumps :( hope to hear from you soon, xxx

Caz - if you don't mind me asking, what part of essex are you in? well my own experience has made me realised what a little known illness HD is, so for all of my lovely residents, and everybody else out there affected by this truly terrible illness, I am determined to raise more awareness and money for the HDA.

Dennis - thank you, and yes, even those who are unable to communicate properly have their own little ways of showing us they really appreciate us being with them!

DT - im so sorry to hear that - its too young :( but i know from work they can be younger. do you care for him?

Matt - that's terrible about your father, and i'm so sorry you tested positive. it must be really difficult caring for him. how are things?

Oh, and one quick update - the post just came through the door and ive received my info pack for a charity cycle ride in vietnam!!! one of my possibilities!

hope to hear from some of you soon, lau xx
lau_xx is offline   Reply With Quote
Old 21-04-09, 07:05 PM   #7
lau_xx
Approved Member
 
Join Date: Apr 2009
Location: Essex
Posts: 6
Default Re: Carer....new to this!

yeah. i know our positions aren't the same but i see devoted families coming to visit my residents, and it fills me with sadness. a lot of the residents are from quite a while as there are so few specialist units. it's nice that he can stay at home for the time being :) i'd love to meet people from here :) i am so determined to raise money for the HDA and awareness of the disease, my work has inspired me so much. do you and your husband have children? lauxxx
lau_xx is offline   Reply With Quote
Old 21-04-09, 08:18 PM   #8
just1moreperson
Approved Member
 
Join Date: Sep 2007
Location: England
Posts: 3,390
Send a message via Yahoo to just1moreperson
Default Re: Carer....new to this!

Perhaps you should pay a visit to the AGM this year in October. If you want to meet HD families there's no bigger gathering.
just1moreperson is offline   Reply With Quote
Old 21-04-09, 08:44 PM   #9
Caz
Approved Member
 
Join Date: Oct 2008
Location: essex
Posts: 437
Default Re: Carer....new to this!

[QUOTE=lau_xx;24372]

Caz - if you don't mind me asking, what part of essex are you in? well my own experience has made me realised what a little known illness HD is, so for all of my lovely residents, and everybody else out there affected by this truly terrible illness, I am determined to raise more awareness and money for the HDA.


Hi Lau
I'm in chelmsford. Is yours the place near colchester way?
I know theres not that many of them.
Caz
xxx
Caz is offline   Reply With Quote
Old 21-04-09, 10:40 PM   #10
kayleigh
Approved Member
 
Join Date: Sep 2008
Location: leyland lancashire
Posts: 1,202
Default Re: Carer....new to this!

hiya again! im 21 now iv been showing signs since i was about 14 but i was only diagnosed when i was about 19 im in a wheelchair now
i lost my dad to hd when i was 17 and my grandad wen i was 13
my boyfriend is my full time carer of me and our little girl which is doubley hard!
i cant do things that i would like to do for her anymore
how long have you done your job for
thanks for looking at our fundraising page! his jump is coming up soon!! xxx
kayleigh is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off

Forum Jump


All times are GMT +1. The time now is 07:08 PM.


About the HDA Message Board

A UK-based forum for people whose lives are affected by Huntington's disease and wish to share their experiences with others. Moderated by SHDAs from the HDA, a UK registered charity.

Please Remember

The HDA Message Board is not a substitute for professional advice. Consult a relevant professional before making decisions that could affect you or others.

Donate to HDA


Powered by vBulletin® Version 3.8.5
Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Registered Charity No. 296453. Website Content © HDA 2010

HDA