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Old 08-01-18, 09:37 PM   #1
Spanishgraeme
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Join Date: Dec 2017
Location: Newcastle
Posts: 21
Default How long sleeping and staying awake

My wife has HD. She tends to sleep 24+ hours and then be awake for a similar length of time. Does everyone find the same situation ?
Can meds help ?
Can meds be the cause ?
Do you try to wake them ?

Any information about similar experiences, solutions, coping strategies etc..........much appreciated.
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Old 20-01-18, 10:47 PM   #2
Red Robin
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Default Re: How long sleeping and staying awake

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Originally Posted by Spanishgraeme View Post
My wife has HD. She tends to sleep 24+ hours and then be awake for a similar length of time. Does everyone find the same situation ?
Can meds help ?
Can meds be the cause ?
Do you try to wake them ?

Any information about similar experiences, solutions, coping strategies etc..........much appreciated.
Good morning from Australia - I cannot offer any help in this matter but I can say my husband is sleeping more and more - I find he now does not wake until midday or later, and of a morning it is almost impossible to wake him, he seems to go into the deepest sleep of a morning. I would take him breakfast around 8.30 am and he would wake and eat but now it is "I'll just have 10 mins more" and I find it is more like 11.30 before he will eat his breakfast and then go back to sleep. He is staying up longer of an evening. He tells everyone he is an outdoors person, doesn't come inside until dark - he doesn't go outside until late afternoon/evening. I believe the HD has affected his body clock. I find his extra time in bed of a day gives me time for me and what I need to achieve.
I did put a question to "Ask the Doctor" (Ask The Doctor [doctor@eurohuntington.org] and this was part of the reply " In summary, we know, that HD influence the sleeping pattern and the sleep itself. There are as well publications about the circadian clock in HD, attached is a review article by Prof. Jennifer Morton from www.HDBuzz.net. She explains circadian clock and sleep disturbances in HD.
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