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Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD

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Old 20-02-18, 10:38 PM   #1
Hoping81
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Join Date: Jun 2017
Location: Gateshead
Posts: 17
Default The waiting game

I feel like im turning in to a messageboard stalker.
I seem to be checking daily for any new conversations just to simply read/interact with people in similar situation to me.
Its been a few weeks since my blood draw and i dont really know how i feel right now. I feel i should be more anxious than i am and because im not its making me more anxious (if that makes sense). I have support from family and friends but i just dont feel i can tell them how i feel or how they can help. To be honest im not sure how i feel about it all and how i can even help myself. Silly really.
Im trying to prepare myself for the worst and feel bad if i think of the best case.
Anyhoo, just wanted to share my thoughts... anyone else out there in this limbo stage?
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Old 21-02-18, 03:17 PM   #2
Spanishgraeme
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Default Re: The waiting game

Quote:
Originally Posted by Hoping81 View Post
I feel like im turning in to a messageboard stalker.
I seem to be checking daily for any new conversations just to simply read/interact with people in similar situation to me.
Its been a few weeks since my blood draw and i dont really know how i feel right now. I feel i should be more anxious than i am and because im not its making me more anxious (if that makes sense). I have support from family and friends but i just dont feel i can tell them how i feel or how they can help. To be honest im not sure how i feel about it all and how i can even help myself. Silly really.
Im trying to prepare myself for the worst and feel bad if i think of the best case.
Anyhoo, just wanted to share my thoughts... anyone else out there in this limbo stage?
It was 17 years ago that my wife was going through, what your going through now.
I can remember it, like it was yesterday.
In her case, she was found to carry the gene. She decided to put it to the back of her mind and just live every day as if it was her last. Lets face it .......if you spend 20 years worrying about something and then you get knocked over and killed, just before it happens........ you've wasted your life.
I hope that you get the news that you want and you can just put it out of your mind, completely. If however, the news is not what you want to hear ..........try to put a positive spin on it. See it as a kick up the **** to make every day wonderful. Take it as an opportunity. A reason to force yourself to live your life now, not later.

The first thing that you think about as you wake, should be the wonderful and exciting day ahead..........the last thing that you think about as you go to sleep should be what a fantastic day you have just had. If it isn't .............we are doing it wrong.

Best of luck to you...🙂
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Old 22-02-18, 11:14 PM   #3
Hoping81
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Join Date: Jun 2017
Location: Gateshead
Posts: 17
Default Re: The waiting game

Quote:
Originally Posted by Spanishgraeme View Post
It was 17 years ago that my wife was going through, what your going through now.
I can remember it, like it was yesterday.
In her case, she was found to carry the gene. She decided to put it to the back of her mind and just live every day as if it was her last. Lets face it .......if you spend 20 years worrying about something and then you get knocked over and killed, just before it happens........ you've wasted your life.
I hope that you get the news that you want and you can just put it out of your mind, completely. If however, the news is not what you want to hear ..........try to put a positive spin on it. See it as a kick up the **** to make every day wonderful. Take it as an opportunity. A reason to force yourself to live your life now, not later.

The first thing that you think about as you wake, should be the wonderful and exciting day ahead..........the last thing that you think about as you go to sleep should be what a fantastic day you have just had. If it isn't .............we are doing it wrong.

Best of luck to you...🙂

I just wanted to say thank you for your kind words. It felt like a text cuddle.😊 which is pretty much what i needed.
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Old 03-03-18, 02:45 PM   #4
Dolphin
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Join Date: May 2008
Location: Surbiton
Posts: 651
Default Re: The waiting game

Hi

Good luck with the test

Dolphin
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Old 16-03-18, 02:35 PM   #5
Hoping81
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Join Date: Jun 2017
Location: Gateshead
Posts: 17
Default Re: The waiting game

Quote:
Originally Posted by Spanishgraeme View Post
It was 17 years ago that my wife was going through, what your going through now.
I can remember it, like it was yesterday.
In her case, she was found to carry the gene. She decided to put it to the back of her mind and just live every day as if it was her last. Lets face it .......if you spend 20 years worrying about something and then you get knocked over and killed, just before it happens........ you've wasted your life.
I hope that you get the news that you want and you can just put it out of your mind, completely. If however, the news is not what you want to hear ..........try to put a positive spin on it. See it as a kick up the **** to make every day wonderful. Take it as an opportunity. A reason to force yourself to live your life now, not later.

The first thing that you think about as you wake, should be the wonderful and exciting day ahead..........the last thing that you think about as you go to sleep should be what a fantastic day you have just had. If it isn't .............we are doing it wrong.

Best of luck to you...🙂

I receieved my test result yesterday.... im negative. Just wanted to thank you all for your support over these past months. I couldnt have had the courage to do it without knowing i had people to talk to who understood.
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Old 16-03-18, 06:18 PM   #6
Crystal
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Default Re: The waiting game

Quote:
Originally Posted by Hoping81 View Post
I receieved my test result yesterday.... im negative. Just wanted to thank you all for your support over these past months. I couldnt have had the courage to do it without knowing i had people to talk to who understood.
Absolutely delighted for you!

Sending my very best wishes
Crystal
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Old 16-03-18, 07:16 PM   #7
Spanishgraeme
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Location: Newcastle
Posts: 21
Default Re: The waiting game

Quote:
Originally Posted by Hoping81 View Post
I receieved my test result yesterday.... im negative. Just wanted to thank you all for your support over these past months. I couldnt have had the courage to do it without knowing i had people to talk to who understood.
Fantastic. I'm so happy for you.

It must be a huge weight off your mind.

What a wonderful feeling to wake up every morning, knowing that you've been given such good news.

Best if luck

Graeme
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Old 16-04-18, 05:23 PM   #8
Gabby
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Join Date: Jan 2015
Location: Berkshire
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Default Re: The waiting game

Quote:
Originally Posted by Hoping81 View Post
I receieved my test result yesterday.... im negative. Just wanted to thank you all for your support over these past months. I couldnt have had the courage to do it without knowing i had people to talk to who understood.
great News

Gabby
x
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Old 16-04-18, 06:10 PM   #9
Cupcake
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Location: East Anglia
Posts: 1,486
Default Re: The waiting game

Absolutely fantastic - I think we all get excited when there is a negative result. X
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Old 16-03-18, 08:09 PM   #10
Runningmum
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Join Date: Jun 2017
Posts: 12
Default Re: The waiting game

Quote:
Originally Posted by Hoping81 View Post
I feel like im turning in to a messageboard stalker.
I seem to be checking daily for any new conversations just to simply read/interact with people in similar situation to me.
Its been a few weeks since my blood draw and i dont really know how i feel right now. I feel i should be more anxious than i am and because im not its making me more anxious (if that makes sense). I have support from family and friends but i just dont feel i can tell them how i feel or how they can help. To be honest im not sure how i feel about it all and how i can even help myself. Silly really.
Im trying to prepare myself for the worst and feel bad if i think of the best case.
Anyhoo, just wanted to share my thoughts... anyone else out there in this limbo stage?
Really happy for you and yours x
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