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Old 06-05-18, 02:26 AM   #1
Ermie77
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Join Date: Oct 2009
Location: Cambridgeshire
Posts: 50
Default Feeling down :(

I didnít know where to post so I posted in here.

I thought I was string but iím having a really hard time dealing with stuff. I had a postive genetic test result in 2004 and am now 40 not showing any symptoms but am dreading normal everyday life. I have never been so scared before. I have a a CAG of 43. I am normally a very together person it at the moment I am thinking what is the point of everything and would anyone actually miss me if i wasnít here
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Old 06-05-18, 11:07 PM   #2
Crystal
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Posts: 236
Default Re: Feeling down :(

Quote:
Originally Posted by Ermie77 View Post
I didnít know where to post so I posted in here.

I thought I was string but iím having a really hard time dealing with stuff. I had a postive genetic test result in 2004 and am now 40 not showing any symptoms but am dreading normal everyday life. I have never been so scared before. I have a a CAG of 43. I am normally a very together person it at the moment I am thinking what is the point of everything and would anyone actually miss me if i wasnít here
Hello Ermie
Really sorry to read your post and to hear how difficult everything is for you and how low you are feeling.
I wanted to try and offer some positive advice, but will admit to not having read all of your previous posts to get a picture of how things have been for you these past few years....but that would have taken a little bit more time and I felt you needed one of us to respond more promptly for you to get the help you desperately need.
None of us is strong really..but we all do our very best to try and maintain a positive outlook.... whether as carers or whether as those with HD, or those living with all the uncertainty of a positive test. How can it be possible to remain strong all the time. So when the chips are down, when we are scared and we wonder 'what is the point'....that's the time to share those feelings with others.... either on here, with your Gp maybe, or your Specialist care advisor for your area....or a good trusted friend maybe....or even another family member if that is possible. If you search deep enough you will know the answer to your question..... YES....a lot of people would miss you. Please do try getting in touch with someone very soon and explain exactly how you are feeling..... don't try to go it alone with these thoughts...
Am thinking of you
Crystal x
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Old 17-05-18, 06:42 PM   #3
Crystal
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Join Date: Sep 2015
Posts: 236
Default Re: Feeling down :(

Quote:
Originally Posted by Ermie77 View Post
I didnít know where to post so I posted in here.

I thought I was string but iím having a really hard time dealing with stuff. I had a postive genetic test result in 2004 and am now 40 not showing any symptoms but am dreading normal everyday life. I have never been so scared before. I have a a CAG of 43. I am normally a very together person it at the moment I am thinking what is the point of everything and would anyone actually miss me if i wasnít here
Hello Ermie
Just a short message to see how you are since your last post?
Am hoping you are feeling a bit better.

Crystal
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Old 17-05-18, 10:54 PM   #4
elessi
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Join Date: Feb 2017
Location: Cornwall
Posts: 27
Default Re: Feeling down :(

im sure you would be missed. my husband has cag 42 his brother has HD so he got tested. he is now symptomatic but he will be 63 this year im telling you this as it could be such a long time before you get anything noticeable. he still has a good life, we have young children and for the most part things are the same as usual. yes we have hard days but you get through them. its hard not to worry but you have a life to live too, enjoy what you can. do what you enjoy and make as many happy memories as you can. remember if you are enjoying life worries can fall aside. x
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Old 25-05-18, 08:45 PM   #5
Cupcake
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Join Date: Mar 2011
Location: East Anglia
Posts: 1,490
Default Re: Feeling down :(

Hi Ermie

Just dropped into the board today, and l8ke others wondering how you are?

I have to say I am very sorry to hear you are feeling so down and nothing seems worth while. Not everyone with HD has the physical symptoms first, quite often depression is one of the first symptoms, who would not feel depressed, the change in the brain can cause severe depression. What you really need to do is go and see your GP and tell them how you are feeling and get some medication to boost you up. It will make you feel a lot better, able to get on with life. You could have a long time before anything else kicks in and you really want to make the most of your life and your family and friends need you too.

My hubby had HD, he had the depression first, very severely, as he ignored the down feelings, did not discuss it with me or anyone until he was severely depressed. With medication it really helped him have good days and I strongly recommend you go and see your doctor or go anD see Roger Barker at Addenbrooke HD clinic as I see you are in Cambs; it will help you.

Take care x
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Old 26-05-18, 10:29 PM   #6
charliegirl
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Join Date: Jun 2013
Location: Lancashire
Posts: 114
Default Re: Feeling down :(

Quote:
Originally Posted by Ermie77 View Post
I didnít know where to post so I posted in here.

I thought I was string but iím having a really hard time dealing with stuff. I had a postive genetic test result in 2004 and am now 40 not showing any symptoms but am dreading normal everyday life. I have never been so scared before. I have a a CAG of 43. I am normally a very together person it at the moment I am thinking what is the point of everything and would anyone actually miss me if i wasnít here
Hi . My thoughts go out to you as well. I donít always post but I felt I needed to - donít feel bad if you donít feel strong - itís ok to have times that are more difficult. I too have the gene - CAG 41 - I have just turned 50. I have struggled with anxiety and depression for a number of years now . I am on antidepressants - which I think help me function. Some days are good and other days are really bleak . I recently contacted the genetic clinic and got a bit more support . It is very difficult when we just want to curl up and die - but remember that there are good days too . You are coping with soo much - so you are strong but are living with a genetic condition that has its own battle , take care , Lv Charlie girl xx
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