Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD |
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20-02-18, 10:38 PM
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#1
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Approved Member
Join Date: Jun 2017
Location: Gateshead
Posts: 17
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The waiting game
I feel like im turning in to a messageboard stalker.
I seem to be checking daily for any new conversations just to simply read/interact with people in similar situation to me.
Its been a few weeks since my blood draw and i dont really know how i feel right now. I feel i should be more anxious than i am and because im not its making me more anxious (if that makes sense). I have support from family and friends but i just dont feel i can tell them how i feel or how they can help. To be honest im not sure how i feel about it all and how i can even help myself. Silly really.
Im trying to prepare myself for the worst and feel bad if i think of the best case.
Anyhoo, just wanted to share my thoughts... anyone else out there in this limbo stage?
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21-02-18, 03:17 PM
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#2
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Approved Member
Join Date: Dec 2017
Location: Newcastle
Posts: 21
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Re: The waiting game
Quote:
Originally Posted by Hoping81
I feel like im turning in to a messageboard stalker.
I seem to be checking daily for any new conversations just to simply read/interact with people in similar situation to me.
Its been a few weeks since my blood draw and i dont really know how i feel right now. I feel i should be more anxious than i am and because im not its making me more anxious (if that makes sense). I have support from family and friends but i just dont feel i can tell them how i feel or how they can help. To be honest im not sure how i feel about it all and how i can even help myself. Silly really.
Im trying to prepare myself for the worst and feel bad if i think of the best case.
Anyhoo, just wanted to share my thoughts... anyone else out there in this limbo stage?
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It was 17 years ago that my wife was going through, what your going through now.
I can remember it, like it was yesterday.
In her case, she was found to carry the gene. She decided to put it to the back of her mind and just live every day as if it was her last. Lets face it .......if you spend 20 years worrying about something and then you get knocked over and killed, just before it happens........ you've wasted your life.
I hope that you get the news that you want and you can just put it out of your mind, completely. If however, the news is not what you want to hear ..........try to put a positive spin on it. See it as a kick up the **** to make every day wonderful. Take it as an opportunity. A reason to force yourself to live your life now, not later.
The first thing that you think about as you wake, should be the wonderful and exciting day ahead..........the last thing that you think about as you go to sleep should be what a fantastic day you have just had. If it isn't .............we are doing it wrong.
Best of luck to you...🙂
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22-02-18, 11:14 PM
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#3
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Approved Member
Join Date: Jun 2017
Location: Gateshead
Posts: 17
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Re: The waiting game
Quote:
Originally Posted by Spanishgraeme
It was 17 years ago that my wife was going through, what your going through now.
I can remember it, like it was yesterday.
In her case, she was found to carry the gene. She decided to put it to the back of her mind and just live every day as if it was her last. Lets face it .......if you spend 20 years worrying about something and then you get knocked over and killed, just before it happens........ you've wasted your life.
I hope that you get the news that you want and you can just put it out of your mind, completely. If however, the news is not what you want to hear ..........try to put a positive spin on it. See it as a kick up the **** to make every day wonderful. Take it as an opportunity. A reason to force yourself to live your life now, not later.
The first thing that you think about as you wake, should be the wonderful and exciting day ahead..........the last thing that you think about as you go to sleep should be what a fantastic day you have just had. If it isn't .............we are doing it wrong.
Best of luck to you...🙂
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I just wanted to say thank you for your kind words. It felt like a text cuddle.😊 which is pretty much what i needed.
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03-03-18, 02:45 PM
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#4
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Approved Member
Join Date: May 2008
Location: Surbiton
Posts: 651
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Re: The waiting game
Hi
Good luck with the test
Dolphin
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16-03-18, 02:35 PM
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#5
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Approved Member
Join Date: Jun 2017
Location: Gateshead
Posts: 17
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Re: The waiting game
Quote:
Originally Posted by Spanishgraeme
It was 17 years ago that my wife was going through, what your going through now.
I can remember it, like it was yesterday.
In her case, she was found to carry the gene. She decided to put it to the back of her mind and just live every day as if it was her last. Lets face it .......if you spend 20 years worrying about something and then you get knocked over and killed, just before it happens........ you've wasted your life.
I hope that you get the news that you want and you can just put it out of your mind, completely. If however, the news is not what you want to hear ..........try to put a positive spin on it. See it as a kick up the **** to make every day wonderful. Take it as an opportunity. A reason to force yourself to live your life now, not later.
The first thing that you think about as you wake, should be the wonderful and exciting day ahead..........the last thing that you think about as you go to sleep should be what a fantastic day you have just had. If it isn't .............we are doing it wrong.
Best of luck to you...🙂
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I receieved my test result yesterday.... im negative. Just wanted to thank you all for your support over these past months. I couldnt have had the courage to do it without knowing i had people to talk to who understood.
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16-03-18, 06:18 PM
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#6
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Approved Member
Join Date: Sep 2015
Posts: 230
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Re: The waiting game
Quote:
Originally Posted by Hoping81
I receieved my test result yesterday.... im negative. Just wanted to thank you all for your support over these past months. I couldnt have had the courage to do it without knowing i had people to talk to who understood.
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Absolutely delighted for you!
Sending my very best wishes
Crystal
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16-03-18, 07:16 PM
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#7
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Approved Member
Join Date: Dec 2017
Location: Newcastle
Posts: 21
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Re: The waiting game
Quote:
Originally Posted by Hoping81
I receieved my test result yesterday.... im negative. Just wanted to thank you all for your support over these past months. I couldnt have had the courage to do it without knowing i had people to talk to who understood.
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Fantastic. I'm so happy for you.
It must be a huge weight off your mind.
What a wonderful feeling to wake up every morning, knowing that you've been given such good news.
Best if luck
Graeme
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16-04-18, 05:23 PM
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#8
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Approved Member
Join Date: Jan 2015
Location: Berkshire
Posts: 346
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Re: The waiting game
Quote:
Originally Posted by Hoping81
I receieved my test result yesterday.... im negative. Just wanted to thank you all for your support over these past months. I couldnt have had the courage to do it without knowing i had people to talk to who understood.
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great News
Gabby
x
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16-04-18, 06:10 PM
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#9
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Approved Member
Join Date: Mar 2011
Location: East Anglia
Posts: 1,483
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Re: The waiting game
Absolutely fantastic - I think we all get excited when there is a negative result. X
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16-03-18, 08:09 PM
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#10
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Approved Member
Join Date: Jun 2017
Posts: 11
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Re: The waiting game
Quote:
Originally Posted by Hoping81
I feel like im turning in to a messageboard stalker.
I seem to be checking daily for any new conversations just to simply read/interact with people in similar situation to me.
Its been a few weeks since my blood draw and i dont really know how i feel right now. I feel i should be more anxious than i am and because im not its making me more anxious (if that makes sense). I have support from family and friends but i just dont feel i can tell them how i feel or how they can help. To be honest im not sure how i feel about it all and how i can even help myself. Silly really.
Im trying to prepare myself for the worst and feel bad if i think of the best case.
Anyhoo, just wanted to share my thoughts... anyone else out there in this limbo stage?
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Really happy for you and yours x
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About the HDA Message Board |
A UK-based forum for people whose lives are affected by Huntington's disease and wish to share their experiences with others. Moderated by SHDAs from the HDA, a UK registered charity.
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The HDA Message Board is not a substitute for professional advice. Consult a relevant professional before making decisions that could affect you or others.
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