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Research, drugs, treatment, new diagnosis Forum for medical issues, and for the recently diagnosed (and families)

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Old 02-07-16, 11:32 AM   #1
LWatson
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Join Date: Sep 2015
Location: Isle of Man
Posts: 9
Default Positive Result

Hi,

I've just tested positive for the HD gene and now I have absolutely no idea what to do with the rest of my life. I'm only 27 and want to live life to its fullest and travel, but whatever I decide to do is still going to require me to work. Has anyone got any suggestions as to what might be fulfilling job wise or travel wise? Was considering doing to the Costa Rica trek for HD, or maybe taking a sabbatical from work and go travelling for 6 months. Alternatively, I could buy a house, but then I'd have to spend my life working in order to pay mortgage and wouldn't be able to afford to travel. So confused :( any advice would be appreciated xxxx
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Old 02-07-16, 06:28 PM   #2
Gabby
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Join Date: Jan 2015
Location: Berkshire
Posts: 333
Default Re: Positive Result

Quote:
Originally Posted by LWatson View Post
Hi,

I've just tested positive for the HD gene and now I have absolutely no idea what to do with the rest of my life. I'm only 27 and want to live life to its fullest and travel, but whatever I decide to do is still going to require me to work. Has anyone got any suggestions as to what might be fulfilling job wise or travel wise? Was considering doing to the Costa Rica trek for HD, or maybe taking a sabbatical from work and go travelling for 6 months. Alternatively, I could buy a house, but then I'd have to spend my life working in order to pay mortgage and wouldn't be able to afford to travel. So confused :( any advice would be appreciated xxxx
Sorry you have tested positive, give yourself time to come to terms with it, but a challenge is good . Do things you enjoy is all I can say and make memories x

Gabby
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Old 03-07-16, 11:42 PM   #3
toosh
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Join Date: Jun 2011
Location: North East
Posts: 570
Default Re: Positive Result

Quote:
Originally Posted by LWatson View Post
Hi,

I've just tested positive for the HD gene and now I have absolutely no idea what to do with the rest of my life. I'm only 27 and want to live life to its fullest and travel, but whatever I decide to do is still going to require me to work. Has anyone got any suggestions as to what might be fulfilling job wise or travel wise? Was considering doing to the Costa Rica trek for HD, or maybe taking a sabbatical from work and go travelling for 6 months. Alternatively, I could buy a house, but then I'd have to spend my life working in order to pay mortgage and wouldn't be able to afford to travel. So confused :( any advice would be appreciated xxxx
Hi
Welcome to the message board

So sorry about your result

You have a lot to take in so as Gabby says let the dust settle before making any rushed decisions.
My advice would be to live life to the max
Travel as much as you can and yeah make lots of great memories.
That's what me amd my hubby have done ( he is 59 and is early - mid stage HD) He only started showing symptoms about 3 years ago so you hopefully have plenty time to enjoy making memories
Wish you the best
X
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Old 11-07-16, 11:28 PM   #4
Cupcake
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Join Date: Mar 2011
Location: East Anglia
Posts: 1,473
Default Re: Positive Result

Hi and welcome to the board, so sorry you have had positive HD result. What to do??????????? Let the dust settle, you will be in turmoil, it's a massive decision to take the test, and then find out you are positive.

Don't know what ages your family have been affected by HD, but hopefully a long way to go until you start seeing any signs. Follow your heart and live life to the full, if you fancy travelling do it. Buying a house is an option, but not the bee all and end all, renting is not cheap these days either. I am a great believer in fate, and your life will already have a route, and you will make choices and decisions as they come up.

My husband died last year aged 54yrs, he was diagnosed with HD 5 years previously, and main sympton of HD with him was depression. He then was diagnosed with multiple myeloma last June and died in the Sept. I have two sons similar ages to you 27yrs and 25yrs, both untested as yet, we are all burying our heads in the sand, after 5 difficult years. I tell them everyday, live for today, do what you want to do, as who knows what tomorrow will bring. As a family we had loads of holidays abroad and captured tons of memories, and I am glad we did that. We had known for nearly 11 yrs hubby was at risk, and chose to ignore it, and live life to the full. Even though you now know you are positive, you must continue to live life to the full,you can't spend each day wondering when it will kick in, follow your heart. Xxxxxxx
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