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Old 19-09-16, 11:09 PM   #1
toosh
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Default jimmy's huntingtons research heroes

For those of you who do Facebook Jimmy Pollard has set up a page as shown in the title above. At the meeting in The Hague there is an interview with Dr Ed Wilde saying they need volunteers from the HD community to take part in clinical trials.
Can someone from the HDA who attended the conference post information about how people can get involved in this. We joined Enrol HD over 2 years ago and heard zilch
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Old 20-09-16, 09:26 AM   #2
alijh
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Default Re: jimmy's huntingtons research heroes

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Originally Posted by jacqueline View Post
Hi toosh
I have already shared it. They are desperate for volunteers.
Although I did offer and they said that was starting again and would elt me know but thy didn't.

Lets see if the mods do as you ask.
I have made Bill aware of this request.
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Old 20-09-16, 09:38 AM   #3
william
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Default Re: jimmy's huntingtons research heroes

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Originally Posted by toosh View Post
For those of you who do Facebook Jimmy Pollard has set up a page as shown in the title above. At the meeting in The Hague there is an interview with Dr Ed Wilde saying they need volunteers from the HD community to take part in clinical trials.
Can someone from the HDA who attended the conference post information about how people can get involved in this. We joined Enrol HD over 2 years ago and heard zilch
Ed Wild spoke about HD Clarity during the conference and advised people to go to the website. This is being done through Enroll-HD and they want 600 volunteers including controls. Please go to HDClarity.net I have copied and pasted below from that website and the UK sites are London and Birmingham.

Get involved

To volunteer for HDClarity, please contact your nearest clinical site.

For general information, please email contact@hdclarity.net.

I hope that helps

Bill
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Old 20-09-16, 01:06 PM   #4
william
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Default Re: jimmy's huntingtons research heroes

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Originally Posted by jacqueline View Post
Thank you for the info Bill.
Much appreciated.

I have emailed them with all the relevant information and volunteered myself as a control option.
I have donated CSF this year too and it's really quite easy and not at all painful. You won't feel a thing. I'm due to have 2 scans within 2 hours next month for the cause too. I've never had a scan before.....

Bill
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Old 20-09-16, 11:46 PM   #5
Allan
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Default Re: jimmy's huntingtons research heroes

Quote:
Originally Posted by toosh View Post
For those of you who do Facebook Jimmy Pollard has set up a page as shown in the title above. At the meeting in The Hague there is an interview with Dr Ed Wilde saying they need volunteers from the HD community to take part in clinical trials.
Can someone from the HDA who attended the conference post information about how people can get involved in this. We joined Enrol HD over 2 years ago and heard zilch
Hi Toosh

All the info, details and contacts for all HD-related trials in the UK are here:

CLINICAL TRIALS

Just pick out the green ones

.
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