Return to HDA home page HDA Message Board
HDA About the HDA HDA What is HD HDA Juvenile HD HDA Children & Young People HDA Professionals HDA Resources HDA Research HDA HDA News HDA Events HDA Contact the HDA HDA Home Page

Outside of office hours if you need someone to speak to you can phone the Samaritans on 116 123


Go Back   HDA Message Board > Message Board Categories > Carers, things that have helped

Carers, things that have helped Share your experiences of caring, and pass on practical advice and helpful tips

Reply
 
Thread Tools Display Modes
Old 01-08-18, 01:36 PM   #1
Monica
Approved Member
 
Join Date: Sep 2012
Posts: 37
Default How to deal with repetitive questioning, and not wanting to be left

Can anyone offer any tips on how to deal with these things:
1. being asked the same thing over and over. I'm feeling like I'm going mad having to answer the same thing many times in a day. I've started writing things down once I've been asked several times, such as ' Every night before she goes to bed, Monica will pull your curtains and let the dog out' - but it doesn't stop my husband asking.

2. not wanting to be left. My husband is ok if I go out in the daytime but if I want to pop out in the evening even for just an hour and a half (say, to slimming club), he starts getting really anxious - he starts shaking and cannot eat etc. I've asked him why it's different in the evening than in the day but he can't explain, he just says he feels stressed. I've said I'd have my mobile phone with me if he needed me but he is still anxious. There is nobody I can ask to sit with him as we have no family nearby and he has no friends. I said I might look into paying someone to sit with him but he isn't happy about that either. Last week I had to take him to a pub and leave him there for an hour while I went to slimming club, and he was happy with that - which is odd since he was with strangers and yet was happier than being at home alone. Does anyone else have this problem and how do you cope with it?

I'm really struggling at the moment as he is so focused on me, I can't do anything hardly without being asked what I'm doing, why, how long will I be. I sat in my own room to watch my favourite tv programme on Sunday as I wanted to be undisturbed for an hour, and he started asking me how long would I be there and would I come down straight after it etc. I'm finding it really hard to be sympathetic because I feel suffocated, as I'm used to my independence. And then I feel guilty as I know he can't help it. Feel quite worn out and almost at the end of my tether.
Monica is offline   Reply With Quote
Old 01-08-18, 07:39 PM   #2
Zlmd2017
Approved Member
 
Join Date: Mar 2017
Posts: 9
Default Re: How to deal with repetitive questioning, and not wanting to be left

I totally hear your point but I'm also understanding your partner's too it's horrible being anxious I know all about the constant same questions etc that is an obvious sign of hd and yes it can be really annoying and frustrating. I have a father who is but he dosent know it because I tested positive for the gene last year but I have not told him as he has 14 grandchildren I hope you are getting suppport from the hd foundation or your local hospice and I wish you all the bestxx
Zlmd2017 is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off

Forum Jump


All times are GMT +1. The time now is 07:48 AM.


About the HDA Message Board

A UK-based forum for people whose lives are affected by Huntington's disease and wish to share their experiences with others. Moderated by SHDAs from the HDA, a UK registered charity.

Please Remember

The HDA Message Board is not a substitute for professional advice. Consult a relevant professional before making decisions that could affect you or others.

Donate to HDA


Powered by vBulletin® Version 3.8.5
Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Registered Charity No. 296453. Website Content © HDA 2010

HDA