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Research, drugs, treatment, new diagnosis Forum for medical issues, and for the recently diagnosed (and families)

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Old 03-12-17, 02:39 PM   #1
New Member
Join Date: Jun 2011
Posts: 3
Default Involuntary movement

Hi, Iíve been diagnosed for about 7 years now, I started showing minor symptoms around 2002.

As well as the HD I also suffer from a bad back for which I take pain relief.

Back in August I started taking Tetrabenazine and clonazipan for my involuntary movement. I started on a low dose of Tet but Iím now up to 125mg a day and it is still not helping enough. I have severe spasms in my left foot that stop me resting or sleeping.

The result of all my medication is that I am permanently tired but my foot stops me from sleeping. The only thing that sometimes works is walking, but that also wears me out. Iíve even had to go out for a walk at 3am!

Has anyone tried a medication that has actually worked for them? Please let me know.

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