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Old 16-11-17, 03:13 PM   #1
Jeanie
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Default Jeanie - New to all this

Hi everyone - I can honestly say I have never posted anything or joined a forum of any kind before and have been genetically diagnosed with HD in 2015. Which to be truthful was a massive shock and at the time I just accepted the diagnosis and ignored it. I had no symptoms but a lot of my mums reactions to things made a lot more sense as I had inherited it from her. 2 years later finds me struggling more cognitively at work and brought this all back. That's enough for today (little steps) but the good news is I haven't passed this on to my son so I am just concentrating on that for.
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Old 19-11-17, 11:40 AM   #2
Gabby
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Default Re: Jeanie - New to all this

Quote:
Originally Posted by Jeanie View Post
Hi everyone - I can honestly say I have never posted anything or joined a forum of any kind before and have been genetically diagnosed with HD in 2015. Which to be truthful was a massive shock and at the time I just accepted the diagnosis and ignored it. I had no symptoms but a lot of my mums reactions to things made a lot more sense as I had inherited it from her. 2 years later finds me struggling more cognitively at work and brought this all back. That's enough for today (little steps) but the good news is I haven't passed this on to my son so I am just concentrating on that for.
Hi Jeanie , talking or writing down your thoughts can sometimes help and lots of people with similar experiences on here to get advice from . My husband started issues at work a while back found change very hard talk to work about adapting you work/ load its a disability and they have to try to help disability discrimination etc. unless you feel you can't manage at all . See your GP too incase you need to have / change medication like antidepressants .

I' m glad your son is ok that is a relief I am sure to you .

take care Gabby
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Old 20-11-17, 07:16 PM   #3
Trish
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Default Re: Jeanie - New to all this

Quote:
Originally Posted by Jeanie View Post
Hi everyone - I can honestly say I have never posted anything or joined a forum of any kind before and have been genetically diagnosed with HD in 2015. Which to be truthful was a massive shock and at the time I just accepted the diagnosis and ignored it. I had no symptoms but a lot of my mums reactions to things made a lot more sense as I had inherited it from her. 2 years later finds me struggling more cognitively at work and brought this all back. That's enough for today (little steps) but the good news is I haven't passed this on to my son so I am just concentrating on that for.
Welcome to Messy Board Jeannie.
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Old 21-11-17, 01:18 PM   #4
Jeanie
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Default Re: Jeanie - New to all this

Hi Trish, Thanks for the welcome. Not a usual thing for me but there is always a first time for everything.
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Old 22-11-17, 07:56 AM   #5
HerminiaValez
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Default Re: Jeanie - New to all this

Hi Welcome :)
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Old 22-11-17, 01:15 PM   #6
Jeanie
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Default Re: Jeanie - New to all this

Hi Gabby. Good advise. I have seen my GP and new medications in place. I find this very difficult to talk about even to my Hubby. I have always managed to deal with all that has been thrown at me (that's another story) by myself. Work is being very unsympathetic and even after their Occupational Health agreed with my requests still refused to amend my duties. This is ongoing and just another stress (HD, whats that!). I am over the moon about my son and thankfully the buck stops here. Anyway I have some time off now so catching up on a few things to keep me occupied. I might get the knitting needles out. Very therapeutic..... Thanks Jeanie.
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Old 27-12-17, 03:19 PM   #7
Jeanie
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Default Re: Jeanie - New to all this

Hi

Thought I'd log in and be nosey and see whats happening. I have thrown my knitting needles in the bin.......It would take that long to knit a square I would have been taking it with me to the other side.

I am 55 soon and have decided that my employer will not punish me for having this dreadful disease and will fight for my rights. I am in a different place now and have a very supportive husband who is standing by me. I am in a position where the first stage of HD has affected me and while I can go to work I will and I refuse to be shuffled off into a corner. I have decided to stand up for people like me who suffer from HD. Seems to me that all the policies are in place but not the actions.

Thanks for the rant and I will let you know how it goes but change as we all know is very slow.
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Old 29-12-17, 12:03 PM   #8
banda
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Default Re: Jeanie - New to all this

Good for you...I'll drink to that! xx
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